Joe Arazi from Hertfordshire is organising a Charity Golf Day in aid of PKD on Sunday 10th June 2018 at Aldenham Golf Club, Hertfordshire. If you play golf and would like to join him, there are still some places available. Just get in touch with us and we can put you in touch with Joe.
As the proud owner of a donated kidney I have a story to tell.
I was very pleased to accompany our very own Tess and Carol (a fellow PKD patient) to the National Registry of Rare Kidney Diseases (RaDaR) conference held in honour of World Rare Disease Day 2018 at the Queen Elizabeth Hospital, Birmingham.