The Renal Association has published a clinical practice guideline for monitoring children and young people with, or at risk of developing Autosomal Dominant Polycystic Kidney Disease (ADPKD).
Researchers at the University of Washington, USA, have developed techniques to grow kidney structures in the lab. They can even make kidney tubules with polycystic kidney disease. We caught up with Professor Benjamin Freedman, who runs the lab, to hear about his groundbreaking research.
I am excited to have been awarded a PhD studentship, co-funded by the PKD charity and I can’t wait to start working on this 3-year project on the ‘Molecular Mechanisms of the Fibrocystin-ATMIN interactions in Autosomal Recessive Polycystic Kidney Disease (ARPKD)’.
As the proud owner of a donated kidney I have a story to tell.
I was very pleased to accompany our very own Tess and Carol (a fellow PKD patient) to the National Registry of Rare Kidney Diseases (RaDaR) conference held in honour of World Rare Disease Day 2018 at the Queen Elizabeth Hospital, Birmingham.