There are two UK clinical/research study groups, one for ADPKD (autosomal dominant polycystic kidney disease) and one for ARPKD (autosomal recessive polycystic kidney disease). If you are a doctor or other healthcare professional, and are interested to join either or both groups, please contact us.
The ADPKD Clinical Study Group (CSG) is part of the UKKRC (UK Kidney Research Consortium). Kidney Research coordinate the work of the UKKRC.
The ARPKD Rare Disease Group (RDG) is part of the UK Kidney Research Association (formerly the Renal Association).