About 70,000 adults and children in the UK may have Polycystic Kidney Disease or PKD - life-threatening inherited conditions that can cause renal (kidney) failure and affect other organs in the body.

We support those affected, their families and carers. We raise awareness and fund research.

Find out more about PKD.


0300 111 1234


Volunteer Stories – Annie Smart

Our volunteers are crucial in helping us change lives. The roles are varied – from organising and hosting Meetups, volunteering at our Information Days, supporting our online communities and much more; they provide dedicated support to the PKD Community across the UK and we are so grateful for their tremendous support.

'Ride It! 2020’ for PKD Research

On 18th July, David Morris took on an incredible challenge, and cycled 1000 miles within 24 hours for PKD Charity in honour of his friend with polycystic kidney disease.

Thank you for taking on the PKD 20k Challenge The Insurance Surgery!

This summer Chris Pullan from The Insurance Surgery went the distance and took part in the PKD 20k Challenge by taking on two rides and clocking in a seriously impressive 67.85 miles!

PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website
  • KPIN