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About 70,000 adults and children in the UK may have Polycystic Kidney Disease or PKD - life-threatening inherited conditions that can cause renal (kidney) failure and affect other organs in the body.

We support those affected, their families and carers. We raise awareness and fund research.

Find out more about PKD.

SUPPORT LINE

0300 111 1234

Baby Ethan

Appeal

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Laura’s Story

“From the moment Ethan arrived,” Laura remembers, “we were in love with our perfect little boy. But within a couple of weeks, the doctor noticed his tummy was larger than normal. An ultrasound showed he had large kidneys. They sent him to a specialist hospital where he was diagnosed with ARPKD.”

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ARPKD family

ARPKD Trustee Vacancy

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The Role

The Polycystic Kidney Disease Charity is seeking to appoint a Trustee with knowledge and experience of ARPKD – autosomal recessive polycystic kidney disease – from a patient, parent, family member or carer perspective.

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Blogs

Taylor Richards - ARPKD PhD student

I am excited to have been awarded a PhD studentship, co-funded by the PKD charity and I can’t wait to start working on this 3-year project on the ‘Molecular Mechanisms of the Fibrocystin-ATMIN interactions in Autosomal Recessive Polycystic Kidney Disease (ARPKD)’.

Philippa takes on her first Marathon for PKD

On 8th April Philippa Harpham is running her first ever marathon and it’s all for the PKD Charity.

Matthew takes on the London Marathon for PKD

Matthew Smart is one of two lucky runners to receive a PKD Charity place in this year's Virgin London Marathon.

Deb the Donor gives Elaine a second chance at life

As the proud owner of a donated kidney I have a story to tell.

Mike takes on the London Marathon for PKD

Mike is one of two runners with a PKD Charity place in the 2018 London Marathon. Here Mike tells us what prompted him to take on such a big challenge for PKD.

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RT @afshin6666: Why not setting up a SFOD in your university. We did it 5 years ago. It is time for other Universities&Colleges look into t…

PKD Charity UK PKD Charity UK

PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit The Information Standard website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website