About 70,000 adults and children in the UK may have Polycystic Kidney Disease or PKD - life-threatening inherited conditions that can cause renal (kidney) failure and affect other organs in the body.

We support those affected, their families and carers. We raise awareness and fund research.

Find out more about PKD.


0300 111 1234

Welcome to the PKD Charity

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World Kidney Day 2021

World Kidney Day 2021

It’s the topic that’s too BIG to ignore.

On Thursday 11 March 2021, join us in highlighting just how big an issue kidney disease is. It’s not a disease that affects only a handful of people; one in nine worldwide have it, including the estimated 70,000 people in the UK that are affected by PKD. Sadly, awareness and therefore understanding is still low, and we need you to help us shout it from the rooftops.

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Introducing Sophia

PKD Charity would like to announce a new starter, Sophia Rapley! Sophia Rapley will be covering Madeleine Martin’s maternity cover as our Community and Events Fundraising Manager.

Volunteer Stories – Annie Smart

Our volunteers are crucial in helping us change lives. The roles are varied – from organising and hosting Meetups, volunteering at our Information Days, supporting our online communities and much more; they provide dedicated support to the PKD Community across the UK and we are so grateful for their tremendous support.

'Ride It! 2020’ for PKD Research

On 18th July, David Morris took on an incredible challenge, and cycled 1000 miles within 24 hours for PKD Charity in honour of his friend with polycystic kidney disease.

PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website
  • KPIN