If you're looking for a relaxed place where you can share their PKD experiences, find support and information, join one of our support groups. 

Owing to COVID, all support group meetings are on Zoom at present. But we hope to organise face-to-face meetings soon.

β€œIt was great to meet others in a similar situation.”
I felt so much better.”

Choose the support group that's best for you:

  • Local group chats - hosted by volunteers with personal experience of PKD (held online early evening during the week or at weekends)
  • 'Let's Talk about it...' - one hour chats on topics such as diagnosis, tolvaptan, PLD and transplant (held online early evening during the week)
  • 'Time to Chat about ARPKD' - specially for parents, carers and adult patients affected by ARPKD (held online early evening during the week)

Upcoming support group meetings

Find a support group

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If you have questions, email Susan.

Need medical advice?

We cannot give medical advice at a support group. If you need medical advice, please contact your GP, kidney doctor or other relevant specialist.


Polycystic Kidney Disease Charity
91 Royal College St, London NW1 0SE
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