PKD Support Groups

If you're looking for a relaxed place where you can share their PKD experiences, find support and information, join one of our support groups.

Some support group meetings are still being held online (Zoom), whilst others are face-to-face (often in a local cafe).

Choose the support group that's best for you:

• Local group chats - hosted by volunteers with personal experience of PKD
• 'Let's Talk about it...' - one hour chats on topics such as diagnosis, tolvaptan, PLD and transplant
• 'Time to Chat about ARPKD' - specially for parents, carers and adult patients affected by ARPKD

If you have questions, email Susan.

We cannot give medical advice at a support group. If you need medical advice, please contact your GP, kidney doctor or another relevant specialist.