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PKD Research Partnership Seeks Subgroup Leaders

27 February 2025 | Jane Pugh | Latest news
Lead a PKD Research Subgroup - Expressions of Interest Invited   The PKD Charity and Kidney Research UK are seeking leaders for 6 theme-specific research subgroups within the newly established UK…
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Remembering Tess Harris: A Legacy of Advocacy and Hope

24 February 2025 | Jane Pugh | Latest news
With a mixture of sorrow and fond memories, we honour Tess (Teresa) Harris, who served as CEO of the PKD Charity until she passed away on March 1, 2024. A year has passed, yet her impact on the Polyc…
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Rare Disease Day: Understanding the Challenges

24 February 2025 | Jane Pugh | Latest news
What is a Rare Disease?  Every year Rare Disease Day raises awareness for the 300 million people worldwide living with a rare disease. In medicine, there’s a well-known saying: “When you hear hoofbe…
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US Woman Makes History as Longest-Living Recipient of Pig Kidney Transplant

14 February 2025 | Jane Pugh | Latest news
In a groundbreaking medical achievement, 53-year-old Towana Looney from Alabama has become the longest-living recipient of a gene-edited pig kidney transplant. As of February 2025, she continues to r…
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Don't Kid Yourself! World Kidney Day 2025

14 February 2025 | Jane Pugh | Latest news
Let’s Bust the Myths About Kidney Disease Together! Tired of hearing "You don’t look ill–it can’t be that bad" or "You can just get a transplant to fix it"? Join us for World Kidney Day, Thursday 1…
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First-Ever KDIGO Guidelines Set to Transform PKD Care

22 January 2025 | Jane Pugh | Latest news
We're excited to announce the publication of the first-ever KDIGO (Kidney Disease: Improving Global Outcomes) Clinical Practice Guideline for Polycystic Kidney Disease (PKD), specifically addressing…
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New Hope for PKD Patients: IMPEDE-PKD Research Study

17 October 2024 | Jane Pugh | Latest news
A ground-breaking research study is underway to investigate whether the diabetes drug metformin can slow the progression of Autosomal Dominant Polycystic Kidney Disease (ADPKD). Understanding ADP…
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Welcoming Alison Taylor as Our New CEO!

11 October 2024 | Jane Pugh | Latest news
We are delighted to announce that Alison Taylor has joined the PKD Charity as our new Chief Executive Officer. Alison brings over 22 years of leadership experience in health and research charities…
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COVID-19 2024 Spring Booster - Who’s eligible?

23 April 2024 | Jane Pugh | Latest news
With protection from earlier COVID-19 vaccinations starting to wane, those who are more likely to become seriously ill from COVID-19 are being offered a free vaccine by the NHS from April 2024. C…
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Pioneering Milestone: First Genetically Modified Pig Kidney Transplant Successfully Performed

23 March 2024 | Jane Pugh | Latest news
On March 16, 2024, the US witnessed a historic medical milestone: the successful completion of the first pig-to-human kidney transplant. This groundbreaking procedure, conducted at Massachusetts Gene…
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