We provide support to patients, carers and family members. We fund innovative research. We publish reliable information about ADPKD and ARPKD. We organise educational events.

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Support

We give practical and emotional support and advice to patients and their families from the moment they’re diagnosed, through treatment and beyond - on the phone, online and face-to-face.

Find out more about our Support services

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Research

We fund innovative research dedicated to improving understanding of polycystic kidney disease (PKD) which will lead to the development of new treatments to slow or prevent PKD progression, reduce pain, better manage other symptoms and improve quality of life.

Find out about our Research activities

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Information

We publish reliable, authoritative health information, written and reviewed by healthcare professionals, scientists and patients/carers on ADPKD and ARPKD. You can find out more about how we produce health information here.

We organise Information and Support days across the UK and online Webinars enabling patients and their families to hear from medical experts and, where possible, meet others with shared experiences.

Educational event

Awareness

Awareness of PKD is low - despite it being the most inherited kidney disease worldwide. We aim to build greater understanding amongst healthcare professionals, the government and the general public about PKD and its physical, emotional and financial burden on patients and families.

Read PKD Stories

Get in touch

Please contact us if you have a question or would like to chat to one of the team


Polycystic Kidney Disease Charity
91 Royal College St, London NW1 0SE
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