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What is ADPKD?

This section provides information about ADPKD (Autosomal Dominant Polycycstic Kidney Disease) including what it is and how it is diagnosed.

To find out more about the many ways we offer support for those affected by PKD, please see our Get Help page.

Illustration of a portion of DNA

ADPKD basics

Learn the basics of ADPKD, including what causes the condition, how it affects the kidneys and other parts of the body, and what it may mean for you and your family.

A magnifying glass hovers over a post-it note saying 'DIAGNOSIS'

How is ADPKD diagnosed?

Find out how ADPKD is diagnosed, including the tests that may be used and when genetic testing might be recommended. Understand what to expect if you or a family member may have the condition.

How is ADPKD diagnosed?

Illustration of a proliferation of what appear to be molecules - all in shades of blue

How are cysts formed?

Learn how cysts develop and grow in ADPKD, and how these fluid-filled sacs can affect the kidneys over time. Understand the role cysts play in the progression of the condition.

How are cysts formed?

On the right a pipette secretes a drop of liquid into a petri dish, on the left a photo of DNA test results with the vertical stripes and horizontal multicoloured bars

Genetic testing and counselling

Learn about genetic testing and counselling for ADPKD, including when testing may be helpful and what the results could mean for you and your family. Understand the support available when considering your options.

Genetic testing and counselling

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