PKD Support Groups

Choose the support group that's best for you.

If you're looking for a relaxed place where you can share your PKD experiences, find support, information, and friendship, join one of our support groups.

Some support group meetings are in-person (often at a local cafe), whilst others are held online (Zoom).

• Regional Groups - Hosted by volunteers with personal experience of PKD.  Please click on the map below to find your nearest local group.
• 'Let's Talk about it...' - One-hour online discussions covering topics like diagnosis, tolvaptan, PLD, and transplant.
• 'Time to Chat about ARPKD' - A dedicated group for parents, carers, and adult patients affected by autosomal recessive polycystic kidney disease (ARPKD).

Our support groups are growing, thanks to our incredible volunteers! The map above shows our regional in-person support groups.

The following are available online:

• Low Clearance Group (online) – for those people wanting to discuss low kidney function, transplantation and dialysis choices.
• Young Adult Group (online)

Check out our upcoming groups - click 'Find a Support Group'!

Got questions or interested in hosting a group in your area? Please email Susan. 

We cannot give medical advice at a support group. If you need medical advice, please contact your GP, kidney doctor or another relevant specialist.