Supporting you
PKD can be tough to deal with. Whether you are newly diagnosed, have lived with PKD for years or care for someone affected, you're not alone, you've got us! For information, practical advice or just someone to talk to - we're here to help.
PKD Support Groups
Groups are available in person and online, with options for different ages, experiences and types of PKD.
Facebook groups
Looking for a friendly, private place to connect with others affected by PKD, who truly understand?
PKD Helpline
Need to speak with someone in person? Find about our confidential helpline and other ways to get in touch.
Educational events
Join our free, friendly and relaxed educational events for people affected by ADPKD or ARPKD, including patients, families and carers.
Financial advice
PKD may affect your finances. This page explains where to find financial advice, including about the benefits you might be entitled to.
Insurance
Getting insurance can be a problem for people affected by PKD. We give you information on finding the best options.
PKD App
We've created a new, free, self-help PKD App to inform and educate people who are newly diagnosed or at early stages of autosomal dominant polycystic kidney disease (ADPKD).
PKD Exercise Programme
Exercise programme for everyone living with PKD. Build strength, knowledge and confidence through a progressive exercise and renal rehab programme.
Get in touch
Please contact us by emailing [email protected] if you have a question or would like to chat to one of the team.