Supporting you
PKD Support Groups
For companionship and understanding, join a local or virtual support group. Owing to COVID-19, some meetings are still held on Zoom, whilst others are face-to-face.
Facebook groups
Looking for a friendly and private place to connect and share with others like you?
PKD Helpline
Need to speak with someone in person? Find about our confidential helpline and other ways to get in touch.
Educational events
Come to a free educational event. Open to all ADPKD and ARPKD patients, families and carers.
Financial advice
We know that living with PKD can bring financial challenges. The support you may be entitled to depends on things such as your income, savings, living costs and health needs.
Insurance
Finding affordable insurance with PKD can sometimes be tricky. The good news is that specialist firms offer cover for people with pre-existing conditions such as PKD. You may pay a little more, so it’s worth shopping around.
PKD App
We've created a new, free, self-help PKD App to inform and educate people who are newly diagnosed or at early stages of autosomal dominant polycystic kidney disease (ADPKD).
PKD Exercise Programme
Exercise programme for everyone living with PKD. Build strength, knowledge and confidence through a progressive exercise and renal rehab programme.