Life with ARPKD

Preparing for appointments can help you get the most out of your care. This resource offers practical tips to help you feel informed and confident when speaking to healthcare professionals.

Work and career plans can sometimes be affected by living with PKD. This resource outlines key considerations, your rights, and the support available.

Getting insurance can be a real problem for people affected by PKD. If you are looking for health, travel, life or critical illness insurance, we give you information on finding the best options.

PKD may affect your ability to work, or mean you reduce your hours. This can have a knock-on effect on your finances. This page explains where to find financial advice, including about the benefits you might be entitled to.