Do you have some spare time and are interested in getting involved with the work of the PKD Charity?
There are lots of ways you can help us, whether you have only an hour to spare or more time.
The service provides one-to-one support by phone. Volunteers receive full training and mentoring, and are then matched with a person directly affected by PKD or a family member/carer who needs someone they can talk to who will understand what they are going through.
PKD Meetups usually take place in a cafe, and are attended by people affected by PKD who would like to meet others in a similar situation. The role of a Meetup Host is to help organise the venue, meet and greet people when they arrive, help get the conversation going and make people feel welcome, and signpost to the charities information and support services when appropriate. This role may be suitable for you if you;
More and more people are taking part in organised fundraising, such as the London Marathon. We're forming a 'PKD Cheering Team' of volunteers around the UK who can go along and help inspire fundraisers to go the extra mile.
We need an enthusiastic volunteer who enjoys posting on Facebook, Twitter and Instagram to help with campaigns on social media.
Throughout the year, we invite 'lay' readers to help us develop our information materials by reviewing and commenting on drafts. You can be a patient, parent, family member or carer.
We're often asked to help researchers with 'patient involvement' and we're often in need of patients, parents and carers to comment on guidelines. If you're interested in providing your experiences or have a keen eye for reading documents, get in touch.
Hospital liaison volunteers help promote our support service to patients with PKD and their families visiting renal units. This role may be suitable for you if you are able to travel independently to and from renal units in your local area.
We have no trustee vacancies at present.
If you feel you can help with the above or anything else, then please contact us.