Facebook groups

Our Facebook groups are welcoming, private communities for people living with PKD, and their families and loved ones. Connect with others who understand, share experiences, ask questions and find support.

UK only.

For ADPKD - autosomal dominant polycystic kidney disease

ADPKD adults patients, family members and carers
Parents of children with ADPKD

For ARPKD - autosomal recessive polycystic kidney disease

ARPKD parents of children with ARPKD and adults patients - family members and carers are welcome too

“I found the group on Facebook and was immediately immersed into a very friendly and welcoming environment.
I felt so much better.”

- Vicky

For help and guidance online, please read the PKD Charity Policy on Social Media and Online Communities.

Medical disclaimer: Content published on social media and online communities is not meant as a substitute for professional medical advice. You must consult your GP, hospital consultant, pharmacist or other health/social care professional if you have any concerns about your health or social situation.

Helpline

0300 111 1234

Helpline

0300 111 1234

Facebook groups

For ADPKD - autosomal dominant polycystic kidney disease

For ARPKD - autosomal recessive polycystic kidney disease

“I found the group on Facebook and was immediately immersed into a very friendly and welcoming environment.
I felt so much better.”

Feedback

Polycystic Kidney Disease Charity

Helpline

0300 111 1234

Helpline

0300 111 1234

Facebook groups

For ADPKD - autosomal dominant polycystic kidney disease

For ARPKD - autosomal recessive polycystic kidney disease

“I found the group on Facebook and was immediately immersed into a very friendly and welcoming environment.I felt so much better.”

Feedback

“I found the group on Facebook and was immediately immersed into a very friendly and welcoming environment.
I felt so much better.”