The PKD Charity has been awarded ‘trusted health care information creator’ status by the Patient Information Forum, an accreditation known as the PIF TICK.

The scheme is the UK’s only assessed quality mark for print and online health and care information. The award follows an external review of how the PKD Charity produces health information for the public.

To be awarded the PIF TICK an organisation must show its health information production process meets 10 criteria, which include making sure users are involved in the development of information, making sure the information is clear, and written to meet the accessibility needs of users.

We are committed to producing reliable, good quality and evidence-based health information. All the content on this site within the sections on 'ADPKD' and 'ARPKD' are reviewed, revised and updated in accordance with the PIF TICK accreditation process.

The PKD PIF TICK process incorporates these principles:

  • Information production - we have a defined process in place that we follow when producing information for the first time and when reviewing it.
  • Evidence source - all our information comes from recognised, trusted sources and references are available for each fact sheet on request.
  • User understanding and involvement - this ensures that information produced for people and families affected by PKD meets their needs.
  • End product - each information piece is checked and read by experts and lay readers for consistency and quality.
  • Feedback - we have a process for managing feedback and ensuring that errors or omissions are corrected.
  • Review - we aim to review each information piece at least every 3 years and sooner if there is new evidence or information.

Find out more about PIF TICK

Please contact us if you have any questions about how we produce health information.


The PKD Charity is responsible for the accuracy of the health and social care information on this website and in printed publications where the PIF TICK health information production process has been applied.

User-generated information is excluded from the scope of accreditation: blogs, forums and personal experience pages or stories – except where personal experience information has been produced through a systematic process of validation.

Polycystic Kidney Disease Charity
91 Royal College St, London NW1 0SE
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