Educational events
Hear from medical experts and ask questions at a free PKD educational event. We hold regular online events and expect to restart our regional information and support days around the UK soon.
Open to PKD patients, their families, friends and anyone who cares for someone affected. Check the link below for details of the next events.
“Fantastic sessions…very informative and interesting.”
Future educational events
Visit our Events page for dates and details of upcoming events
Recordings of recent educational events
ABOUT ADPKD
- 'What is Polycystic Kidney Disease?' by Dr Albert Power
- 'ADPKD in Children and Young People by Dr Matko Marlais
DIET
- Shake your salt habit! Renal Dietitian Fiona Hunter explains how much salt is too much salt, and offers practical ways to reduce your intake while ensuring your food packs a flavoursome punch!
- 'Role of Alkaline Diet in Kidney Health' by Caroline Passey, Renal Dietitian
- 'PLADO - a plant-dominant, low-protein nutritional approach for chronic kidney disease' by Dr Kam Kalantar-Zadeh
GENETICS
POLYCYSTIC LIVER DISEASE (PLD)
PROGRESSSION
TREATMENT
KIDNEY TRANSPLANT
- 'The road to transplant in ADPKD' by Mr Hussein Khambalia
- 'The surgery: retrieval and transplant' by Mr Hussein Khambalia
- 'The Transplant Laboratory: why so many blood tests?' by Dr Judith Worthington
- ‘Psychological aspects of renal failure and transplant’ by Dr Nicola Reid
- ‘The role of the transplant recipient coordinator’ by Mal Greenwood-Morgan
- ‘What to expect on the transplant ward’ by Guy Bradburn
- ‘Transplant medicines explained’ by Sian Ellis
- ‘What happens after you go home/the transplant clinic' by Mr Hussein Khambalia
- 'Renal failure and transplant; the patient'a story' by Jane Pugh
- 'Q&A' some of the panel answer audience questions
LIVING DONATION & KIDNEY TRANSPLANT
- Living donors: who's eligible and the steps involved to donating a kidney, by Mr Tunde Campbell
- Live donor journey: psychological challenges, post surgery follow-up, and employer support, by Sr. Lyndsey Rushton
- The donor's story, by Alexandra Dobbyns and her recipient Martin Cunningham
RESEARCH
- ARPKD: an introduction and overview - Dr Larissa Kerecuk, Consultant Paediatric Nephrologist
- What's new in ARPKD - Dr Max Liebau, Consultant Paediatric Nephrologist
- ARPKD and the Liver - Dr Tassos Grammatikopoulos, Consultant Paediatric Hepatologist
- ARPKD: Dialysis and Transplantation issues - Mr Nicos Kessaris, Consultant Transplant Surgeon
- Q&A