
Educational events
Hear from medical experts and ask questions at a free PKD educational event.
Check for details of our next events, and view talks from previous events below.
“Fantastic sessions…very informative and interesting.”
- Attendee
Recordings of recent educational events
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Talks from earlier events by topic:
About ADPKD
- 'ADPKD and me: the basics' by Dr Roslyn Simms
- 'What is Polycystic Kidney Disease?' by Dr Albert Power
- 'ADPKD in Children and Young People' by Dr Matko Marlais
Diet
- Shake your salt habit! Renal Dietitian Fiona Hunter explains how much salt is too much salt, and offers practical ways to reduce your intake while ensuring your food packs a flavoursome punch!
- 'Role of Alkaline Diet in Kidney Health' by Caroline Passey, Renal Dietitian
- 'PLADO - a plant-dominant, low-protein nutritional approach for chronic kidney disease' by Dr Kam Kalantar-Zadeh
Family Planning and Pregnancy
Lifestyle
Genetics
- 'Genetics: when & who to test' by Dr Jackie Cook
- 'Autosomal Polycystic Kidney Disease genetics explained' by Dr Anand Saggar
Polycystic Liver Disease (PLD)
- Talk by Dr Ahmed Elsharkawy, Consultant Transplant Hepatologist, on Polycystic Liver Disease (PLD) followed by a live Q&A
- 'Polycystic Liver Disease (PLD) - a condition with many more questions than answers' by Dr Ahmed Elsharkawy
- Polycystic Liver Disease (PLD) Research Q&A 2023
Progression
Treatment
- 'Tolvaptan: the experience so far (plus patient story)' by Dr Matthew Gittus
- 'Tolvaptan Q&A' with Professor Daniel Gale
- 'What is Tolvaptan and how does it work?' by Dr Grahame Wood
- 'Skin Care for Kidney Patients' by Dr Jacqueline Nevols
- ‘PKD & Nephrectomy” by Mr Nicholas Inston and Mr James Barnes
Kidney Transplant
- 'Matching for Transplant: a guide to Compatibility and Blood Tests' by Dr Judith Worthington
- 'The surgeon and ADPKD: when you need a transplant', Mr Badri Shrestha
- 'Kidney transplant in ADPKD' by Mr Hussein Khambalia
- 'The surgery: retrieval and transplant' by Mr Hussein Khambalia
- 'The Transplant Laboratory: why so many blood tests?' by Dr Judith Worthington
- ‘Matching for Transplant: a guide to Compatibility and Blood Tests’ by Dr Nicola Reid
- ‘The role of the transplant recipient coordinator’ by Mal Greenwood-Morgan
- ‘What to expect on the transplant ward’ by Guy Bradburn
- ‘Transplant medicines explained’ by Sian Ellis
- ‘What happens after you go home/the transplant clinic' by Mr Hussein Khambalia
- 'Renal failure and transplant; the patient's story' by Jane Pugh
- 'Q&A' some of the panel answer audience questions
Living Donation and Kidney Transplant
- 'Living donors: who's eligible and the steps involved to donating a kidney', by Mr Tunde Campbell
- 'Live donor journey: psychological challenges, post surgery follow-up, and employer support', by Sr. Lyndsey Rushton
- 'The road to transplant in living organ donation' by Mr Hussein Khambalia
- The donor's story, by Alexandra Dobbyns and her recipient Martin Cunningham
Research
- 'ADPKD: what the future holds for patients', by Professor Albert Ong
- 'Are kidney Cilia the key to understanding ADPKD?' by Dr Shalabh Srivastava
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- ARPKD: an introduction and overview - Dr Larissa Kerecuk, Consultant Paediatric Nephrologist
- What's new in ARPKD - Dr Max Liebau, Consultant Paediatric Nephrologist
- ARPKD and the Liver - Dr Tassos Grammatikopoulos, Consultant Paediatric Hepatologist
- ARPKD: Dialysis and Transplantation issues - Mr Nicos Kessaris, Consultant Transplant Surgeon
- Q&A