Educational events

Talks from earlier events by topic:

About ADPKD

• 'ADPKD and me: the basics' by Dr Roslyn Simms
• 'What is Polycystic Kidney Disease?' by Dr Albert Power
• 'ADPKD in Children and Young People' by Dr Matko Marlais

Diet

• Shake your salt habit! Renal Dietitian Fiona Hunter explains how much salt is too much salt, and offers practical ways to reduce your intake while ensuring your food packs a flavoursome punch!
• 'Role of Alkaline Diet in Kidney Health' by Caroline Passey, Renal Dietitian
• 'PLADO - a plant-dominant, low-protein nutritional approach for chronic kidney disease' by Dr Kam Kalantar-Zadeh

Family Planning and Pregnancy

• Dr Kate Bramham, Consultant Nephrologist and Katherine Clark, Renal Midwife, discuss the whole pregnancy journey in ADPKD

Lifestyle

• 'Stay Fit and Active' with PKD with Dr Courtney Lightfoot and Dr Tom Wilkinson

Genetics

• 'Genetics: when & who to test' by Dr Jackie Cook
• 'Autosomal Polycystic Kidney Disease genetics explained' by Dr Anand Saggar

Polycystic Liver Disease (PLD)

• Talk by Dr Ahmed Elsharkawy, Consultant Transplant Hepatologist, on Polycystic Liver Disease (PLD) followed by a live Q&A
• 'Polycystic Liver Disease (PLD) - a condition with many more questions than answers' by Dr Ahmed Elsharkawy
• Polycystic Liver Disease (PLD) Research Q&A 2023

Progression

• 'Living with reduced kidney function and planning for future treatment' by Anne Crompton

Treatment

• 'Tolvaptan: the experience so far (plus patient story)' by Dr Matthew Gittus
• 'Tolvaptan Q&A' with Professor Daniel Gale
• 'What is Tolvaptan and how does it work?' by Dr Grahame Wood 
• 'Skin Care for Kidney Patients' by Dr Jacqueline Nevols
• ‘PKD & Nephrectomy” by Mr Nicholas Inston and Mr James Barnes

Kidney Transplant

• 'Matching for Transplant: a guide to Compatibility and Blood Tests' by Dr Judith Worthington
• 'The surgeon and ADPKD: when you need a transplant', Mr Badri Shrestha
• 'Kidney transplant in ADPKD' by Mr Hussein Khambalia
• 'The surgery: retrieval and transplant' by Mr Hussein Khambalia
• 'The Transplant Laboratory: why so many blood tests?' by Dr Judith Worthington
• ‘Matching for Transplant: a guide to Compatibility and Blood Tests’ by Dr Nicola Reid
• ‘The role of the transplant recipient coordinator’ by Mal Greenwood-Morgan
• ‘What to expect on the transplant ward’ by Guy Bradburn
• ‘Transplant medicines explained’ by Sian Ellis
• ‘What happens after you go home/the transplant clinic' by Mr Hussein Khambalia
• 'Renal failure and transplant; the patient's story' by Jane Pugh
• 'Q&A' some of the panel answer audience questions

Living Donation and Kidney Transplant

• 'Living donors: who's eligible and the steps involved to donating a kidney', by Mr Tunde Campbell
• 'Live donor journey: psychological challenges, post surgery follow-up, and employer support', by Sr. Lyndsey Rushton
• 'The road to transplant in living organ donation' by Mr Hussein Khambalia
• The donor's story, by Alexandra Dobbyns and her recipient Martin Cunningham

Research

• 'ADPKD: what the future holds for patients', by Professor Albert Ong
• 'Are kidney Cilia the key to understanding ADPKD?' by Dr Shalabh Srivastava

• ARPKD: an introduction and overview - Dr Larissa Kerecuk, Consultant Paediatric Nephrologist
• What's new in ARPKD - Dr Max Liebau, Consultant Paediatric Nephrologist
• ARPKD and the Liver - Dr Tassos Grammatikopoulos, Consultant Paediatric Hepatologist
• ARPKD: Dialysis and Transplantation issues - Mr Nicos Kessaris, Consultant Transplant Surgeon
• Q&A