These tips are to help you get the most out of your appointments with your GP, kidney specialist and other healthcare professionals. They are written for adults with autosomal dominant polycystic kidney disease (ADPKD) and autosomal recessive polycystic kidney disease (ARPKD) and their families.
Appointments about your own health or the health of a loved one can be stressful, and at times upsetting. A lot of important information is often covered in a short time. It can be frustrating to walk away from an appointment realising that you didn’t say what you planned to or that you have new questions. You may also later struggle to remember the details from the appointment.
Feel more in control and focused by planning ahead and use some of our tips
Claudia says “I keep a notebook handy or use an app on my phone to note down anything I want to mention at my next appointment.”
Below are some of the questions you may want to ask at appointments to check your kidney function.
Written by Hannah Bridges, PhD, independent medical writer, HB Health Comms Limited.
With thanks to all those affected by ADPKD who contributed to this publication.
Contact us for the version of this factsheet with scientific references.
IS Ref No: ADPKD.AT.V1.0
© PKD Charity 2017
First published September 2017
Due to be medically reviewed September 2020
Disclaimer: This information is primarily for people in the UK. We have made every effort to ensure that the information we provide is correct and up to date. However, it is not a substitute for professional medical advice or a medical examination. We do not promote or recommend any treatment. We do not accept liability for any errors or omissions. Medical information, the law and government regulations change rapidly, so always consult your GP, pharmacist or other medical professional if you have any concerns or before starting any new treatment.
If you don't have access to a printer and would like a printed version of this information sheet, or any other PKD Charity information, call the PKD Charity Helpline on 0300 111 1234 (weekdays, 9am-5pm) or email
The PKD Charity Helpline offers confidential support and information to anyone affected by PKD, including family, friends, carers, newly diagnosed or those who have lived with the condition for many years.