Sonia and Susana
User Rating: 5 / 5
Identical twins Sonia and Susana, share their story of living with PKD and the Facebook post that led to receiving the greatest gift of all!
Are You PKD Aware?
Although Polycystic kidney Disease (PKD) causes pain and suffering to millions around the globe - with the first case dating as far back to the death of the King of Poland in 1586 - awareness and therefore understanding of the disease is still very low. We want to change that.
PKD Voices features the tragic as well as triumphant stories of those who live with PKD: men, women, and children, each with a unique experience to share. We hope you’ll get involved in helping to spread the word. Read and share, and if you’ve a story to tell please do get in touch This email address is being protected from spambots. You need JavaScript enabled to view it..
Although Polycystic kidney Disease (PKD) causes pain and suffering to millions around the globe - with the first case dating as far back to the death of the King of Poland in 1586 - awareness and therefore understanding of the disease is still very low. We want to change that.
PKD Voices features the tragic as well as triumphant stories of those who live with PKD: men, women, and children, each with a unique experience to share. We hope you’ll get involved in helping to spread the word. Read and share, and if you’ve a story to tell please do get in touch This email address is being protected from spambots. You need JavaScript enabled to view it..
Mark Mears
User Rating: 5 / 5
Meet Mark, transplant recipient, PKD Charity fundraiser and volunteer, who discovered a love of running that not only gave him a new lease of life but also led to him becoming a British Transplant Games medalist.
Pat Wilson
Pat Wilson is an Honorary Professor at University College, London (UCL) in the Department of Renal Medicine. She also chairs the PKD Charity Research Advisory Board and recently became a trustee of PKD Charity.
Karen and Daniel Stapleton
User Rating: 5 / 5
PKD Charity trustee Karen whose son Daniel was diagnosed with ARPKD at just over 18 months old, shares their very special story.
Rebecca Murphy-Peers
User Rating: 5 / 5
During organ donation week, we share a special story from our trustee Rebecca Murphy-Peers, whose Mum Geraldine leaves an incredible legacy.
Rob and Christine
User Rating: 5 / 5
As transplant centres begin to reopen, after most procedures were suspended due to Covid-19, we rejoice in the good fortune of one of our PKD members.
Claire Pullinger
User Rating: 5 / 5
It’s not every day that a trip to the dentist leads to a diagnosis of PKD. But this is exactly what happened to Claire Pullinger, who’d expected nothing more than the removal of amalgam fillings.
Sally Sutton
User Rating: 5 / 5
Double celebration for Sally as she reaches 20th anniversary of kidney transplant and 70th birthday in the same week!
Laurence Lacey’s Everesting Cycling Challenge
User Rating: 5 / 5
On 5th July, Laurence Lacey took on an incredible Everesting Cycling Challenge in memory of his Mum, Vanessa.
