Although Polycystic kidney Disease (PKD) causes pain and suffering to millions around the globe - with the first case dating as far back to the death of the King of Poland in 1586 - awareness and therefore understanding of the disease is still very low. We want to change that.
PKD Voices features the tragic as well as triumphant stories of those who live with PKD: men, women, and children, each with a unique experience to share. If you’ve a story to tell please do get in touch here.
The number of living organ donors in the UK has trebled over the last 20 years, with Kidneys accounting for 98% of living organ donations in 2019/20. Here, 34 year old James Hayley explains how logic - as well as a lifetime bond - led him to donate a kidney to best friend, Josh.
Grossly enlarged kidneys are common for many people with PKD, often leading to severe pain, infection and even mobility problems. Kayla, a 38 year old teaching assistant, wife and mum tells the story of having surgery to remove kidneys that weighed the equivalent of several bags of sugar, plus her hopes for a new future thanks to her selfless sister.
Receiving a new kidney is the dream of anyone living with kidney failure, yet for some, the dream can become a nightmare. Here, 55 year old mum of two, Helen, bravely tells the story of her painful journey with polycystic kidney disease that has left her battle scarred, but not without fight.