Although Polycystic kidney Disease (PKD) causes pain and suffering to millions around the globe - with the first case dating as far back to the death of the King of Poland in 1586 - awareness and therefore understanding of the disease is still very low. We want to change that.
PKD Voices features the tragic as well as triumphant stories of those who live with PKD: men, women, and children, each with a unique experience to share. If you’ve a story to tell please do get in touch here.
It's every parent's worst nightmare to have a poorly child. For Tori and Carl Amos, when 11-week-old Luke began to scream and turn blue while playing happily in his rocker one day, they were suddenly faced with a very different future to the one they’d envisaged.
The number of living organ donors in the UK has trebled over the last 20 years, with Kidneys accounting for 98% of living organ donations in 2019/20. Here, 34 year old James Hayley explains how logic - as well as a lifetime bond - led him to donate a kidney to best friend, Josh.