Karen and Daniel Stapleton
With #PKDAwareness Month well under way, today we hear from our trustee Karen whose son Daniel was diagnosed with ARPKD at just over 18 months old.
Are You PKD Aware?
September is PKD Awareness month! It’s our chance to shine a light on the suffering, and the triumphs of those who live with Polycystic kidney Disease (PKD). Although the first case of PKD dates back to the death of the King of Poland in 1586, and affects millions around the globe, awareness and therefore understanding of the disease still remains very low. Throughout the month, and beyond, we’ll be featuring different PKD Voices. The stories of you; men, women, and children, each with a unique PKD experience to share. We do hope you’ll get involved in helping to spread the word.
September is PKD Awareness month! It’s our chance to shine a light on the suffering, and the triumphs of those who live with Polycystic kidney Disease (PKD). Although the first case of PKD dates back to the death of the King of Poland in 1586, and affects millions around the globe, awareness and therefore understanding of the disease still remains very low. Throughout the month, and beyond, we’ll be featuring different PKD Voices. The stories of you; men, women, and children, each with a unique PKD experience to share. We do hope you’ll get involved in helping to spread the word.
Rebecca Murphy-Peers
User Rating: 5 / 5
During organ donation week, we share a special story from our trustee Rebecca Murphy-Peers, whose Mum Geraldine leaves an incredible legacy.
Rob and Christine
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As transplant centres begin to reopen, after most procedures were suspended due to Covid-19, we rejoice in the good fortune of one of our PKD members.
Claire Pullinger
It’s not every day that a trip to the dentist leads to a diagnosis of PKD. But this is exactly what happened to Claire Pullinger, who’d expected nothing more than the removal of amalgam fillings.
Sally Sutton
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Double celebration for Sally as she reaches 20th anniversary of kidney transplant and 70th birthday in the same week!
Laurence Lacey’s Everesting Cycling Challenge
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On 5th July, Laurence Lacey took on an incredible Everesting Cycling Challenge in memory of his Mum, Vanessa.
