Find a group that's right for you
Regional PKD Connect Groups
Our regional groups are hosted by volunteers with personal experience of PKD. Meetings are usually held in person, often in a local café or community venue. Use the map below to find your nearest group.
Time to Chat about ARPKD
An online group for parents, carers and adults affected by autosomal recessive polycystic kidney disease (ARPKD).
Online groups
We also offer online groups for people who would like to connect with others from across the UK:
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- Low Clearance Group – for people living with low kidney function, including those considering or preparing for dialysis or transplantation.
- Young Adult Group – an online group exclusively for people aged 18–30.
- Post-Transplant Group – a space to share experiences, practical tips and advice with others who have had a kidney transplant.
Our groups are growing thanks to our incredible volunteers, who help create welcoming spaces where people affected by PKD can connect and support one another.
Take a look at our upcoming groups and find the one that’s right for you click 'Find a Support Group'!
Interested in starting a group?
Would you like to help bring people affected by PKD together in your area? If you’re interested in hosting a PKD Connect group, or have any questions, please email Susan.
