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Symptoms of ADPKD

Managing ADPKD Pain

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Find out about the different types of pain ADPKD can cause, and how this pain can be treated

Chronic pain (defined as persistent or longer-term pain) is common in people with autosomal dominant polycystic kidney disease (ADPKD). About 6 in 10 people who have been diagnosed with the condition have chronic pain. An enlarged kidney or liver pressing on other organs or tissues is often the likely cause of this pain.

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Kidney Stones

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Kidney stones are formed from crystals of substances found in urine, and can vary in size from tiny particles to large, smooth or irregular lumps. The stones are formed in the kidney, but can pass into the bladder and the ureters (the two tubes connecting the kidneys to the bladder).

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Aneurysms

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Around 4-8 in 100 people with ADPKD have a small aneurysm: a ‘ballooning out’ of a blood vessel due to weakness in the vessel wall. Aneurysms may occur in the blood vessels of the brain (when they are called intracranial aneurysms, ICA or ‘berry aneurysms’).

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Polycystic Liver Disease

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People with ADPKD can develop cysts in organs other than the kidney, most commonly the liver.

The number of liver cysts increases with age and with the severity of kidney cysts. Liver cysts are very rare in children and teenagers with ADPKD. But by the age of 30, one fifth of people with ADPKD have liver cysts, rising to nearly three quarters of people in their 60s.

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Diverticular Disease

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A diverticulum (plural: diverticula) is a small pouch that sticks out from the side of the colon (large bowel). Diverticula can affect anyone, especially older people. However, they seem to be more common in people with ADPKD than in people without kidney problems.

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