The Voice of PKD
Supporting people affected by polycystic kidney disease, raising awareness and funding research
Latest news
January 17, 2022
Living Well on Haemodialysis
Researchers at the University of Derby and the University of Nottingham are looking for people to take part in a trial of new online materials designed to help people live well on dialysis.
December 20, 2021
UK's most vulnerable to receive life-saving COVID-19 treatments
Thousands of the UK’s most vulnerable people are now among the first in the world to access life-saving, cutting-edge antiviral and antibody treatments for Covid-19 at home.
December 09, 2021
PatientView to move to Patients Know Best
The UK Kidney Association (UKKA) has signed an important deal with Patients Know Best (PKB) to re-platform the national patient-facing system PatientView to the PKB personal health records platform.
October 27, 2021
Grant to promote PKD treatment research
The PKD Charity has just awarded a £45,000 grant to the UCL Division of Medicine at the Royal Free Hospital London to part-fund a 3-year PhD Studentship.
October 14, 2021
ADPKD aneurysm risk study
People with autosomal dominant polycystic kidney disease (ADPKD) are known to be at high risk of intracranial aneurysms (IA).
September 26, 2021
COVID-19 (Coronavirus) and polycystic kidney disease update
We provide some quick facts here on COVID-19 for people with autosomal dominant polycystic kidney disease (ADPKD).
September 15, 2021
Recommendations for third or booster COVID-19 vaccines
Clarification on kidney patients who are eligible for the third primary dose or booster COVID-19 vaccination is now available.
September 02, 2021
Third dose of Covid vaccine for severely immunosuppressed
The JCVI advises that a third dose should be offered to people over 12 who were severely immunosuppressed at the time of their first or second dose, including those with leukaemia, advanced HIV…
August 18, 2021
New research on Covid-19 vaccines
Research published this month highlights the need for a third covid-19 vaccine dose for kidney patients, with calls for the JCVI to prioritise roll out.
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