About PKD

Polycystic Kidney Disease or PKD is a range of life-threatening inherited conditions that can cause kidney failure and affect other organs

Learn about ADPKD or ARPKD

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We want everyone affected by PKD to live life to the full by providing the help, information and support needed at every stage. 

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PKD research

Research is the only way to stop the progression of PKD and transform the lives of those affected today and in the future.

Read more about PKD research

Latest news

November 04, 2021

3rd Dose v Booster - What's the difference?

by Jane Pugh

As confusion around the Covid-19 3rd dose and booster continues, your guide to explain which vaccination you should be getting, what the difference is between them, and how to get the one you…
October 14, 2021

ADPKD aneurysm risk study

by Tess Harris

People with autosomal dominant polycystic kidney disease (ADPKD) are known to be at high risk of intracranial aneurysms (IA).
September 26, 2021

COVID-19 (Coronavirus) and polycystic kidney disease update

by Hannah Bridges

We provide some quick facts here on COVID-19 for people with autosomal dominant polycystic kidney disease (ADPKD). 
September 15, 2021

Recommendations for third or booster COVID-19 vaccines

by Jane Pugh

Clarification on kidney patients who are eligible for the third primary dose or booster COVID-19 vaccination is now available.
September 02, 2021

Third dose of Covid vaccine for severely immunosuppressed

by Jane Pugh

The JCVI advises that a third dose should be offered to people over 12 who were severely immunosuppressed at the time of their first or second dose, including those with leukaemia, advanced HIV…
August 18, 2021

New research on Covid-19 vaccines

by Jane Pugh

Research published this month highlights the need for a third covid-19 vaccine dose for kidney patients, with calls for the JCVI to prioritise roll out.
February 26, 2021

PKD Charity and Healx collaborate to apply AI to the discovery of novel treatments for rare kidney diseases

by Tess Harris

Healx, the AI-powered, patient-inspired technology company accelerating the discovery and development of rare disease treatments at scale, today announced that it would be collaborating with the PKD Charity to identify and progress novel…
May 13, 2020

Funding awarded to landmark research project studying chronic pain in ADPKD

by Jane Pugh

We’re delighted to announce a major award from the National Institute for Health Research (NIHR) - the nation's largest funder of health and care research - to study pain in Autosomal Dominant Polycystic…
January 03, 2020

Are kidney cilia the key to understanding ADPKD?

by Tess Harris

The PKD Charity has awarded £10,000 to Newcastle University to analyse the cilia in kidney cells from ADPKD patients.

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