Some support group meetings are in-person (often at a local cafe), whilst others are held online (Zoom).
- Regional Groups - Hosted by volunteers with personal experience of PKD
- 'Let's Talk about it...' - One-hour online discussions covering topics like diagnosis, tolvaptan, PLD, and transplant.
- 'Time to Chat about ARPKD' - A dedicated group for parents, carers, and adult patients affected by autosomal recessive polycystic kidney disease (ARPKD).
Our support groups are growing, thanks to our incredible volunteers! Here are the in-person and online groups currently available:
- Bedfordshire
- Birmingham
- Derbyshire
- Greater Manchester
- Hampshire
- Herefordshire
- Liverpool
- London
- Low Clearance Group (online) – for those people wanting to discuss low kidney function, transplantation and dialysis choices.
- Newcastle
- Norfolk
- Wales (online)
- Wiltshire
- Young Adult Group (online)
Check out our upcoming groups - click 'Find a Support Group'!
Got questions or interested in hosting a group in your area? Please email Susan.
