Susan Muirhead

Susan Muirhead joined us in March 2019 as the Community Support Manager at the PKD Charity. Susan coordinates a programme of personalised, non-medical support services for individuals and families affected by PKD. These include online PKD Forums, nationwide telephone peer support; topic-based conference calls, webinars and meetups.

Susan has experience of PKD, having seen personally the effects of it as a PKD wife, mother and kidney donor.

Over seven years ago Susan discovered the closed UK PKD support Facebook group which she started to promote and make more active. It has since grown significantly, and each day we welcome new members.