• Information Days Face-to-face information and support days, where you can hear from medical experts and meet others living with PKD.
• Live Q&A Sessions Our online question and answer sessions. Put your questions to kidney specialists from home.
• Q&A on Demand Recordings of our past live Q&A sessions, grouped by topic, covering ADPKD and ARPKD.
• Leaflets & Posters Our free, PIF TICK accredited leaflets and posters. View them online or order printed copies.
• ADPKD Resources Health information about autosomal dominant polycystic kidney disease: symptoms, treatment and living with ADPKD.
• ARPKD Resources Health information about autosomal recessive polycystic kidney disease, for parents, families and the children affected.
• Get Help The PKD Helpline, support groups, financial and insurance advice, and the PKD App.

PKD Live Q&A Recordings

• ADPKD

  Most Recent Q&As

  • Polycystic Liver Disease (PLD) with Dr Aarathi Vijayashanker
  • Understanding Blood Tests by Dr Matt Gittus
  • Advanced Kidney Care Clinic for Low Function by Kidney Nurse Specialist Anne Crompton 

  About ADPKD

  • Newly Diagnosed with PKD by Dr Matt Gittus
  • ADPKD Basics: how ADPKD is diagnosed, its stages, and its causes by Dr Nicholas Annear
  • ADPKD and me: the basics by Dr Roslyn Simms
  • What is Polycystic Kidney Disease? by Dr Albert Power
  • ADPKD in Children and Young People by Prof Manish Sinah and Dr Matko Marlais
  • ADPKD in Children and Young People by Dr Matko Marlais

  Aneurysms

  • PKD and Aneurysms by Professor Diederik Bulters

  Diet

  • Shake your salt habit! Renal Dietitian Fiona Hunter explains how much salt is too much salt, and offers practical ways to reduce your intake while ensuring your food packs a flavoursome punch!
  • 'Role of Alkaline Diet in Kidney Health' by Caroline Passey, Renal Dietitian
  • 'PLADO - a plant-dominant, low-protein nutritional approach for chronic kidney disease' by Dr Kam Kalantar-Zadeh

  Family Planning and Pregnancy

  • Dr Kate Bramham, Consultant Nephrologist and Katherine Clark, Renal Midwife, discuss the whole pregnancy journey in ADPKD

  Lifestyle

  • 'Stay Fit and Active' with PKD with Dr Courtney Lightfoot and Dr Tom Wilkinson

  Genetics

  • Genetics and Genetic Testing: the benefits of testing, interpreting results, and IVF pre-implantation testing by Professor John Sayer
  • Genetics: when & who to test by Dr Jackie Cook
  • Autosomal Polycystic Kidney Disease genetics explained by Dr Anand Saggar

  Polycystic Liver Disease (PLD)

  • Polycystic Liver Disease (PLD) with Dr Aarathi Vijayashanker
  • Talk by Dr Ahmed Elsharkawy, Consultant Transplant Hepatologist, on Polycystic Liver Disease (PLD) followed by a live Q&A
  • 'Polycystic Liver Disease (PLD) - a condition with many more questions than answers' by Dr Ahmed Elsharkawy
  • Polycystic Liver Disease (PLD) Research Q&A 2023

  Progression

  • Advanced Kidney Care Clinic for Low Function by Kidney Nurse Specialist Anne Crompton 
  • 'Living with reduced kidney function and planning for future treatment' by Anne Crompton

  Treatment

  • Anaemia in PKD by Kidney Specialist Nurse, Anne Crompton
  • Kidney Infection in PKD by Dr Yuki Heath
  • Understanding Blood Tests by Dr Matt Gittus
  • 'Tolvaptan: the experience so far (plus patient story)' by Dr Matthew Gittus
  • 'Tolvaptan Q&A' with Professor Daniel Gale
  • 'What is Tolvaptan and how does it work?' by Dr Grahame Wood 
  • 'Skin Care for Kidney Patients' by Dr Jacqueline Nevols
  • 'PKD & Nephrectomy' by Mr Nicholas Inston and Mr James Barnes
  • 'PKD and Hypertension' by Dr Matthew Gittus
  • 'Pain in PKD: Causes and Management' by Dr Yuki Heath
  • 'Anaemia in PKD' by Kidney Specialist Nurse, Anne Crompton

  Kidney Transplant

  • Transplant in PKD by Consultant Transplant Surgeon, Mr Hussein Khambalia
  • 'Matching for Transplant: a guide to Compatibility and Blood Tests' by Dr Judith Worthington
  • 'The surgeon and ADPKD: when you need a transplant', Mr Badri Shrestha
  • 'Kidney transplant in ADPKD' by Mr Hussein Khambalia
  • 'The surgery: retrieval and transplant' by Mr Hussein Khambalia
  • 'The Transplant Laboratory: why so many blood tests?' by Dr Judith Worthington
  • ‘Matching for Transplant: a guide to Compatibility and Blood Tests’ by Dr Nicola Reid
  • ‘The role of the transplant recipient coordinator’ by Mal Greenwood-Morgan
  • ‘What to expect on the transplant ward’ by Guy Bradburn
  • ‘Transplant medicines explained’ by Sian Ellis
  • ‘What happens after you go home/the transplant clinic' by Mr Hussein Khambalia
  • 'Renal failure and transplant; the patient's story' by Jane Pugh
  • 'Q&A' some of the panel answer audience questions

  Living Donation and Kidney Transplant

  • 'Living donors: who's eligible and the steps involved to donating a kidney', by Mr Tunde Campbell
  • 'Live donor journey: psychological challenges, post surgery follow-up, and employer support', by Sr. Lyndsey Rushton
  • 'The road to transplant in living organ donation' by Mr Hussein Khambalia
  • The donor's story, by Alexandra Dobbyns and her recipient Martin Cunningham

  Research

  • IMPEDE-PKD trial by Dr Ragada El-Damanawi
  • 'ADPKD: what the future holds for patients', by Professor Albert Ong
  • 'Are kidney Cilia the key to understanding ADPKD?' by Dr Shalabh Srivastava
  • HIYA-PKD Study (high blood pressure in children) with Professor Manish Sinha

• ARPKD

  • ARPKD: an introduction and overview - Dr Larissa Kerecuk, Consultant Paediatric Nephrologist
  • What's new in ARPKD - Dr Max Liebau, Consultant Paediatric Nephrologist
  • ARPKD and the Liver - Dr Tassos Grammatikopoulos, Consultant Paediatric Hepatologist
  • ARPKD: Dialysis and Transplantation issues - Mr Nicos Kessaris, Consultant Transplant Surgeon
  • Q&A

ADPKD

Most Recent Q&As

• ▶Polycystic Liver Disease (PLD) with Dr Aarathi Vijayashanker
• ▶Understanding Blood Tests by Dr Matt Gittus
• ▶Advanced Kidney Care Clinic for Low Function by Kidney Nurse Specialist Anne Crompton

About ADPKD

• ▶Newly Diagnosed with PKD by Dr Matt Gittus
• ▶ADPKD Basics: how ADPKD is diagnosed, its stages, and its causes by Dr Nicholas Annear
• ▶ADPKD and me: the basics by Dr Roslyn Simms
• ▶What is Polycystic Kidney Disease? by Dr Albert Power
• ▶ADPKD in Children and Young People by Prof Manish Sinah and Dr Matko Marlais
• ▶ADPKD in Children and Young People by Dr Matko Marlais

Aneurysms

• ▶PKD and Aneurysms by Professor Diederik Bulters

Diet

• ▶Shake your salt habit! Renal Dietitian Fiona Hunter explains how much salt is too much salt, and offers practical ways to reduce your intake while ensuring your food packs a flavoursome punch!
• ▶'Role of Alkaline Diet in Kidney Health' by Caroline Passey, Renal Dietitian
• ▶'PLADO - a plant-dominant, low-protein nutritional approach for chronic kidney disease' by Dr Kam Kalantar-Zadeh

Family Planning and Pregnancy

• ▶Dr Kate Bramham, Consultant Nephrologist and Katherine Clark, Renal Midwife, discuss the whole pregnancy journey in ADPKD

Lifestyle

• ▶'Stay Fit and Active' with PKD with Dr Courtney Lightfoot and Dr Tom Wilkinson

Genetics

• ▶Genetics and Genetic Testing: the benefits of testing, interpreting results, and IVF pre-implantation testing by Professor John Sayer
• ▶Genetics: when & who to test by Dr Jackie Cook
• ▶Autosomal Polycystic Kidney Disease genetics explained by Dr Anand Saggar

Polycystic Liver Disease (PLD)

• ▶Polycystic Liver Disease (PLD) with Dr Aarathi Vijayashanker
• ▶Talk by Dr Ahmed Elsharkawy, Consultant Transplant Hepatologist, on Polycystic Liver Disease (PLD) followed by a live Q&A
• ▶'Polycystic Liver Disease (PLD) - a condition with many more questions than answers' by Dr Ahmed Elsharkawy
• ▶Polycystic Liver Disease (PLD) Research Q&A 2023

Progression

• ▶Advanced Kidney Care Clinic for Low Function by Kidney Nurse Specialist Anne Crompton
• ▶'Living with reduced kidney function and planning for future treatment' by Anne Crompton

Treatment

• ▶Anaemia in PKD by Kidney Specialist Nurse, Anne Crompton
• ▶Understanding Blood Tests by Dr Matt Gittus
• ▶'Tolvaptan: the experience so far (plus patient story)' by Dr Matthew Gittus
• ▶'Tolvaptan Q&A' with Professor Daniel Gale
• ▶'What is Tolvaptan and how does it work?' by Dr Grahame Wood
• ▶'Skin Care for Kidney Patients' by Dr Jacqueline Nevols
• ▶'PKD & Nephrectomy' by Mr Nicholas Inston and Mr James Barnes
• ▶'PKD and Hypertension' by Dr Matthew Gittus
• ▶'Pain in PKD: Causes and Management' by Dr Yuki Heath
• ▶'Anaemia in PKD' by Kidney Specialist Nurse, Anne Crompton

• Kidney Infection in PKD by Dr Yuki Heath

Kidney Transplant

• ▶Transplant in PKD by Consultant Transplant Surgeon, Mr Hussein Khambalia
• ▶'Matching for Transplant: a guide to Compatibility and Blood Tests' by Dr Judith Worthington
• ▶'The surgeon and ADPKD: when you need a transplant', Mr Badri Shrestha
• ▶'Kidney transplant in ADPKD' by Mr Hussein Khambalia
• ▶'The surgery: retrieval and transplant' by Mr Hussein Khambalia
• ▶'The Transplant Laboratory: why so many blood tests?' by Dr Judith Worthington
• ▶‘Matching for Transplant: a guide to Compatibility and Blood Tests’ by Dr Nicola Reid
• ▶‘The role of the transplant recipient coordinator’ by Mal Greenwood-Morgan
• ▶‘What to expect on the transplant ward’ by Guy Bradburn
• ▶‘Transplant medicines explained’ by Sian Ellis
• ▶‘What happens after you go home/the transplant clinic' by Mr Hussein Khambalia
• ▶'Renal failure and transplant; the patient's story' by Jane Pugh
• ▶'Q&A' some of the panel answer audience questions

Living Donation and Kidney Transplant

• ▶'Living donors: who's eligible and the steps involved to donating a kidney', by Mr Tunde Campbell
• ▶'Live donor journey: psychological challenges, post surgery follow-up, and employer support', by Sr. Lyndsey Rushton
• ▶'The road to transplant in living organ donation' by Mr Hussein Khambalia
• ▶The donor's story, by Alexandra Dobbyns and her recipient Martin Cunningham

Research

• ▶IMPEDE-PKD trial by Dr Ragada El-Damanawi
• ▶'ADPKD: what the future holds for patients', by Professor Albert Ong
• ▶'Are kidney Cilia the key to understanding ADPKD?' by Dr Shalabh Srivastava

• HIYA-PKD Study (high blood pressure in children) with Professor Manish Sinha

ARPKD

• ▶ARPKD: an introduction and overview - Dr Larissa Kerecuk, Consultant Paediatric Nephrologist
• ▶What's new in ARPKD - Dr Max Liebau, Consultant Paediatric Nephrologist
• ▶ARPKD and the Liver - Dr Tassos Grammatikopoulos, Consultant Paediatric Hepatologist
• ▶ARPKD: Dialysis and Transplantation issues - Mr Nicos Kessaris, Consultant Transplant Surgeon
• ▶Q&A

Life with ADPKD

• 

  Diet and lifestyle in ADPKD

  Diet and lifestyle choices can play an important role in managing ADPKD. This resource explains practical steps to support kidney health in everyday life.

  Diet and lifestyle in ADPKD

• 

  Wellbeing

  Living well with ADPKD involves balancing your health, wellbeing, and daily activities. This resource offers guidance to help you maintain a good quality of life.

  Living well

• 

  Appointment tips

  Preparing for appointments can help you get the most out of your care. This resource offers practical tips to help you feel informed and confident when speaking to healthcare professionals.

  Appointment tips

• 

  Pregnancy and ADPKD

  ADPKD can raise questions around pregnancy and planning a family. This resource explains potential risks and the support available before, during, and after pregnancy.

  Pregnancy

• 

  Employment advice

  Work and career plans can sometimes be affected by living with ADPKD. This resource outlines key considerations, your rights, and the support available.

  Employment advice

• 

  Financial advice

  PKD may affect your ability to work, or mean you reduce your hours. This can have a knock-on effect on your finances. This page explains where to find financial advice, including about the benefits you might be entitled to.

  Financial advice

• 

  Insurance

  Getting insurance can be a real problem for people affected by PKD. If you are looking for health, travel, life or critical illness insurance, we give you information on finding the best options.

  Insurance

Pregnancy

• 

  Planning a pregnancy

  Planning a pregnancy

• 

  Being pregnant

  Being pregnant

• 

  Giving birth

  Giving birth

Dialysis

• 

  Introduction to dialysis

  Dialysis is a treatment that takes over some of the kidney’s functions when they can no longer work effectively. This resources gives an overview of dialysis and the types of dialysis avaiable.

  Introduction to dialysis

• 

  Haemodialysis

  This section explains more about haemodialysis, the most commonly used type of dialysis, where a machine filters your blood to remove waste and fluid.

  Haemodialysis

• 

  Peritoneal dialysis

  This section explains more about peritoneal dialysis, a less commonly used type of dyalisis, where a special type of fluid is added into a space in your abdomen (tummy). 

  Peritoneal dialysis

Surgery for ADPKD

• 

  Kidney removal (nephrectomy)

  Kidney removal (nephrectomy)

• 

  Kidney transplant

  Kidney transplant

• 

  Liver transplant

  Liver transplant