Our dedicated PKD fundraising team will be with you every step of the way – offering ideas, resources, and encouragement to help you smash your fundraising target.
Email our fundraising team at [email protected] TODAY to avoid disappointment!
Since 2000, PKD Charity has been here for everyone affected by polycystic kidney disease (PKD), funding vital research, raising awareness, and providing trusted support when it’s needed most.
But kidney research remains hugely underfunded. Less than 1% of all health research funding in the UK goes to kidney disease. That’s why your support matters so much. Thanks to people like you, we’ve already invested over £770,000 into groundbreaking research, bringing hope to thousands of families living with PKD.
Together, we’ve made progress. But there’s still more to do.
With your support, we can:
Fund more research into better treatments, so dialysis and transplants are no longer the norm.
Provide continuous support for families facing the daily challenges of PKD.
Push for better care and awareness across the UK.
Our vision is clear: a future where PKD is manageable and no longer life-limiting.
Alison Taylor is Chief Executive of PKD Charity:
“By choosing to give monthly, you’re offering PKD Charity more than just a donation, you’re giving us consistency, stability, and hope. From as little as £3 a month, your regular support helps us change the future of PKD treatment and care, and support generations to come.
Your commitment allows us to plan for the future, sustain long-term research, and dedicate more of our time to helping people living with PKD, instead of focusing on costly fundraising campaigns. With your help, we can be there for every person affected by PKD."
Start your monthly gift today, because real change takes time, and we can’t do it without you.
Our dedicated PKD fundraising team will be with you every step of the way – offering ideas, resources, and encouragement to help you smash your fundraising target.
Email our fundraising team TODAY at [email protected] to avoid disappointment!
This year, we’re taking Team PKD to new heights - 1,085 metres to be exact.
In the early hours of May 31and June 7 2026, guided by experienced mountain leaders, we will ascend Llanberis Path to watch the sun rise over the breathtaking Welsh countryside.
Climbing Snowdon in the daylight is memorable, but doing it under the stars, with the moon lighting your path, transforms it into something truly extraordinary. This night-time summit is an experience you’ll remember for a lifetime.
📅 When: May 31 & June 7, 2026 📍 Where: Llanberis Pass 💷 Registration: £30 (payable to Travel and Trek) 🎯 Fundraising Target: £350
For further details and to sign up for this incredible challenge, get in touch with us today and secure your place on the team.
The plane has crashed. You’re lost in the Peak District. And your only way home is to work together…
Team PKD must come together to find a way back to safety. Think escape room… but instead of four walls, you have the stunning landscape of Derbyshire as your playground.
Starting with only a few clues, your team will need to work together to figure out where you are, solve puzzles, crack clues and use the landscape around you to navigate your way to safety.
This isno ordinary hike.
Will there be puzzles to solve? Absolutely. Will there be Clues to crack? You will definitely need your wits about you. A hike through the Peak District? Of course there will. An abseil? Maybe . . . . . . . .
📅 When: Saturday 26 June 📍 Where: Kinder Scout
Whether you're a seasoned adventurer or simply looking for something completely different, this is not your usual charity event, Escape Kinder Scout is an adventure to remember, and it's suitable for everyone.
Are you brave enough to attempt Escape Kinder Scout?
Fundraising option
By choosing the fundraising option, you pay a deposit of £40 and then commit to a minimum fundraising target of £350. PKD Charity will then cover the remainder of the event cost with the rest going straight to PKD Charity as fundraising
Self fund option
If you would like to fund your own adventure then this is the option for you. You cover the £125 for the event with no set fundraising target, but we do ask that you aim for £350. All of the money you raise will come straight to PKD Charity.
Or do you have ADPKD and also have a child aged 12-17 years?
If yes, you are invited to participate in a research study taking place at Evelina London Children’s Hospital, and Royal Manchester Children’s Hospital, investigating blood pressure in children at risk of ADPKD.
Professor Manish Sinha (Consultant Paediatric Nephrologist) is leading the study in London, and Dr Dean Wallace (Consultant Paediatric Nephrologist) is leading the study in Manchester.
The aim of this study is to measure blood pressure and look at the potential effect of this on the health of the heart, blood tubes (arteries) and other organs.
As part of this study, we will:
Do an MRI scan of the kidneys and heart
Assess blood pressure using several techniques
Check for ADPKD by a genetic test
This will most commonly require one visit to the hospital. We will cover some travel expenses for you to visit your chosen study site.
Why Is This Important?
One of the earliest signs of ADPKD is high blood pressure, which can appear even in childhood. If left untreated, high blood pressure can speed up kidney damage and place extra strain on the heart and other organs.
The early detection and managementof high blood pressure is a simple but crucial step towards protecting long-term health.
Meet The Principal Investigators
ProfessorManish Sinha, Chief Investigator for the HIYA-PKD study, is a Consultant Paediatric Nephrologist at Evelina London Children’s Hospital with over 20 years’ experience caring for children with kidney conditions.
A leading expert in autosomal dominant and recessive polycystic kidney disease (ADPKD and ARPKD), Professor Sinha also holds a PhD from King’s College London focused on hypertension and cardiovascular health in young people with kidney disease.
In this video, he shares why the HIYA-PKD study is so important for improving understanding and care for children and young people at risk of ADPKD.
Dr Dean Wallace is a Consultant Paediatric Nephrologist and principle Investigator for the Manchester site of Hiya-PKD. He has over a decade of experience in managing children with kidney conditions and specialises in the areas of dialysis, hypertension, tubulopathies and research trials.
The Hiya-PKD study combines his interests in the cardiovascular consequences of types of chronic kidney diseases with his passion for conducting high impact research trials and producing high quality evidence for children.
Take Part in the Study
We’d love for you to be part of our research. If you’re interested, simply click the link below to complete a short survey:
If you would like to speak to us about what support we can offer you or a loved one, please visit PKD Support or contact us today and speak to a member of our team.
Join us in celebrating PKD Charity’s monumental 25th anniversary! This is a special opportunity to honour the people who have made a difference in your journey - whether it's a dedicated medical professional, a generous donor, a donor’s family, or the memory of a loved one.
Together, let’s fill our Tree of Celebration with color and gratitude as we recognize the incredible individuals who have shaped our community.
We are truly grateful for your support of PKD Charity. Your generosity and kindness help us continue our vital work supporting individuals and families affected by polycystic kidney disease.
We all wish you lots of luck and we hope that you win the main prize of £25,000! No matter the outcome, you are already making a huge difference to us and the PKD Community that we support, and we can’t thank you enough.
If you'd like to stay updated on our latest news, inspiring stories, and ways to get involved, we’d love for you to sign up for our E-newsletter here. That way, you'll never miss an update on the impact of your support.
Once again, thank you for being a part of our PKD community. Your support means the world to us!
We welcome feedback on the information provided on this webpage. If you have any feedback regarding the information provided on this webpage, please complete the Feedback Form
Dr Dean Wallace is a Consultant Paediatric Nephrologist and principle Investigator for the Manchester site of Hiya-PKD. He has over a decade of experience in managing children with kidney conditions and specialises in the areas of dialysis, hypertension, tubulopathies and research trials. 
