About us

Founded in 2000, we’re the first and only UK charity solely dedicated to improving the lives of an estimated 70,000 individuals and their families affected by polycystic kidney disease (PKD) in the UK.

PKD is a range of life-threatening inherited conditions that can cause kidney failure and affect other organs in the body such as the liver, brain, heart and bowels. Most people with PKD live with an uncertain prognosis, intermittent pain and infections, and then have to undergo life-saving dialysis or transplant in their 50s. A few babies have a rare form of PKD which results in death during pregnancy or shortly after birth; the surviving children often have to have either a kidney or liver transplant before the age of 10.

We provide reliable, accredited information, advice and personalised support. We raise awareness of the burden of PKD, both clinical and psychosocial. We fund research aimed at understanding more about PKD and the discovery of therapies that will improve quality and longevity of life.

What we do

Since 2000 we’ve been helping individuals and families with polycystic kidney disease (PKD) to live life as fully as possible by providing personal support, information, raising awareness and funding research.

Our people

We have a small team of employees who work remotely and are supported by a dedicated board of trustees. We are also privileged to have very loyal volunteers who give their time to help support others with PKD, raise funds and awareness of PKD.

Volunteers

We are privileged to have very loyal volunteers who give their time to help support others with PKD, join us at events, host local groups and meetups, proofread and get involved in research studies.

Annual accounts

We raise money for our activities from voluntary donations, grants from foundation trusts and corporate companies, and the fundraising activities of our supporters.

Vacancies

We have no vacancies at present.

Fundraising promise

At the PKD Charity, we have made a Fundraising Promise to our supporters. Our promise outlines how we will behave when doing our fundraising and ensures that our fundraising is legal, honest, open, transparent and accountable.

PIF TICK

The PKD Charity has been awarded ‘trusted health care information creator’ status by the Patient Information Forum, an accreditation known as the PIF TICK.