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About ARPKD

ARPKD is short for Autosomal Recessive Polycystic Kidney Disease. ARPKD is a rare condition affecting 1 in 20,000 live births, boys and girls equally. It causes enlarged kidneys (with or without cysts), liver enlargement and high blood pressure.

Click the links below to find out more about ARPKD and what to expect if you are at risk of your child inheriting the condition or have a child born with ARPKD.

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PKD Charity is a Member of

  • Visit Ciliopathy Alliance website
  • Visit PKD International website
  • Visit EURORDIS website
  • Visit the Genetic Alliance UK website
  • Visit The Information Standard website
  • National Voices Website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website