We are the only charity in the UK dedicated to the concerns of people with PKD - Polycystic Kidney Disease - a range of inherited, incurable disorders that can cause kidney failure and a reduced quality of life.
Our aims are:
- To support PKD patients, their families and carers, with information and advice, help and understanding
- To fund research into determining the causes of PKD, discovering treatments and a cure
- To raise awareness of PKD, providing information about PKD to patients, the public, the medical community and the media
Find out more about PKD
ADPKD - AUTOSOMAL DOMINANT POLYCYSTIC KIDNEY DISEASE, the world’s most common inherited life-threatening condition, in which fluid-filled cysts develop in both kidneys. Between 1 in 400 and 1 in 1000 people worldwide suffer from ADPKD. Over half of those affected will have kidney failure by the time they are 60 years old. If someone has ADPKD, there is a 50% likelihood that the disease will pass to each child.
ARPKD - AUTOSOMAL RECESSIVE POLYCYSTIC KIDNEY DISEASE occurs in children and results in enlarged kidneys with or without cysts, liver enlargement and often high blood pressure. In ARPKD, sadly, 30% to 50% of ARPKD infants die at birth or shortly thereafter, primarily as the result of underdeveloped lungs.