Educational events
PKD in-person and online educational events
Hear from medical experts, learn more about PKD (ADPKD and ARPKD), get your questions answered and connect with others who understand life with PKD.
See upcoming in-person and online events.
Missed an event? Explore our growing library of recorded PKD Live Q&As, covering a range of topics from diagnosis and treatment to living well with PKD.
See below for our PKD Live recordings.
Most Recent Q&As
- Living Kidney Donation with Living Donor Transplant Coordinator Caroline Basarab-Horwath
- Polycystic Liver Disease (PLD) with Dr Aarathi Vijayashanker
- Understanding Blood Tests by Dr Matt Gittus
- Advanced Kidney Care Clinic for Low Function by Kidney Nurse Specialist Anne Crompton
About ADPKD
- Newly Diagnosed with PKD by Dr Matt Gittus
- ADPKD Basics: how ADPKD is diagnosed, its stages, and its causes by Dr Nicholas Annear
- ADPKD and me: the basics by Dr Roslyn Simms
- What is Polycystic Kidney Disease? by Dr Albert Power
- ADPKD in Children and Young People by Prof Manish Sinah and Dr Matko Marlais
- ADPKD in Children and Young People by Dr Matko Marlais
Aneurysms
Diet
- Shake your salt habit! Renal Dietitian Fiona Hunter explains how much salt is too much salt, and offers practical ways to reduce your intake while ensuring your food packs a flavoursome punch!
- 'Role of Alkaline Diet in Kidney Health' by Caroline Passey, Renal Dietitian
- 'PLADO - a plant-dominant, low-protein nutritional approach for chronic kidney disease' by Dr Kam Kalantar-Zadeh
Family Planning and Pregnancy
Lifestyle
Genetics
- Genetics and Genetic Testing: the benefits of testing, interpreting results, and IVF pre-implantation testing by Professor John Sayer
- Genetics: when & who to test by Dr Jackie Cook
- Autosomal Polycystic Kidney Disease genetics explained by Dr Anand Saggar
Polycystic Liver Disease (PLD)
- Polycystic Liver Disease (PLD) with Dr Aarathi Vijayashanker
- Talk by Dr Ahmed Elsharkawy, Consultant Transplant Hepatologist, on Polycystic Liver Disease (PLD) followed by a live Q&A
- 'Polycystic Liver Disease (PLD) - a condition with many more questions than answers' by Dr Ahmed Elsharkawy
- Polycystic Liver Disease (PLD) Research Q&A 2023
Progression
- Advanced Kidney Care Clinic for Low Function by Kidney Nurse Specialist Anne Crompton
- 'Living with reduced kidney function and planning for future treatment' by Anne Crompton
Treatment
- Anaemia in PKD by Kidney Specialist Nurse, Anne Crompton
- Kidney Infection in PKD by Dr Yuki Heath
- Understanding Blood Tests by Dr Matt Gittus
- 'Tolvaptan: the experience so far (plus patient story)' by Dr Matthew Gittus
- 'Tolvaptan Q&A' with Professor Daniel Gale
- 'What is Tolvaptan and how does it work?' by Dr Grahame Wood
- 'Skin Care for Kidney Patients' by Dr Jacqueline Nevols
- 'PKD & Nephrectomy' by Mr Nicholas Inston and Mr James Barnes
- 'PKD and Hypertension' by Dr Matthew Gittus
- 'Pain in PKD: Causes and Management' by Dr Yuki Heath
- 'Anaemia in PKD' by Kidney Specialist Nurse, Anne Crompton
Kidney Transplant
- Transplant in PKD by Consultant Transplant Surgeon, Mr Hussein Khambalia
- 'Matching for Transplant: a guide to Compatibility and Blood Tests' by Dr Judith Worthington
- 'The surgeon and ADPKD: when you need a transplant', Mr Badri Shrestha
- 'Kidney transplant in ADPKD' by Mr Hussein Khambalia
- 'The surgery: retrieval and transplant' by Mr Hussein Khambalia
- 'The Transplant Laboratory: why so many blood tests?' by Dr Judith Worthington
- ‘Matching for Transplant: a guide to Compatibility and Blood Tests’ by Dr Nicola Reid
- ‘The role of the transplant recipient coordinator’ by Mal Greenwood-Morgan
- ‘What to expect on the transplant ward’ by Guy Bradburn
- ‘Transplant medicines explained’ by Sian Ellis
- ‘What happens after you go home/the transplant clinic' by Mr Hussein Khambalia
- 'Renal failure and transplant; the patient's story' by Jane Pugh
- 'Q&A' some of the panel answer audience questions
Living Donation and Kidney Transplant
- 'Living donors: who's eligible and the steps involved to donating a kidney', by Mr Tunde Campbell
- 'Live donor journey: psychological challenges, post surgery follow-up, and employer support', by Sr. Lyndsey Rushton
- 'The road to transplant in living organ donation' by Mr Hussein Khambalia
- The donor's story, by Alexandra Dobbyns and her recipient Martin Cunningham
Research
- IMPEDE-PKD trial by Dr Ragada El-Damanawi
- 'ADPKD: what the future holds for patients', by Professor Albert Ong
- 'Are kidney Cilia the key to understanding ADPKD?' by Dr Shalabh Srivastava
- HIYA-PKD Study (high blood pressure in children) with Professor Manish Sinha
- ARPKD: an introduction and overview - Dr Larissa Kerecuk, Consultant Paediatric Nephrologist
- What's new in ARPKD - Dr Max Liebau, Consultant Paediatric Nephrologist
- ARPKD and the Liver - Dr Tassos Grammatikopoulos, Consultant Paediatric Hepatologist
- ARPKD: Dialysis and Transplantation issues - Mr Nicos Kessaris, Consultant Transplant Surgeon
- Q&A