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Volunteers Needed!

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We are looking for volunteers to help with our support service. We have roles for two types of volunteers.

Meetup Host Volunteers

We are in need of volunteers to help host our social meetups. The Meetups usually take place in a cafe, and are attended by people affected by PKD who would like to meet others in a similar situation. The role of a Meet Up Host is to meet and greet people when they arrive, help get the conversation going and make people feel welcome, and signpost to the charities information and support services when appropriate.  This role may be suitable for you if you;

  • Like meeting people
  • Have good listening skills

Hospital Liaison Volunteer

Hospital liaison volunteers help promote our support service to patients with PKD and their families visiting renal units.  This role may be suitable for you if you are able to travel independently to and from renal units in your local area.

Full training and out-of-pocket expenses are provided.  For an informal chat or to request a volunteer pack, please contact: This email address is being protected from spambots. You need JavaScript enabled to view it. or phone Esther on 07739 632836 (Mon-Fri 10am to 4.30pm, or leave a message outside these hours)

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PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit The Information Standard website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website