Unique opportunity for parents, family members and adult patients affected by either Autosomal Recessive Polycystic… https://t.co/12iG4zlwJT
PKD Phone Support
We offer support through our one-to-one telephone peer support service, and group support via the teleconference support calls.
One-to-one Telephone Peer Support
When we’re going through a difficult time living with Polycystic Kidney Disease (PKD) or experiencing a period of change, sometimes it can be helpful to talk to someone who understands how we feel. A supportive, listening ear and reassurance can help us to feel more confident. We have trained volunteers who can provide telephone peer support to adults affected by ADPKD (Autosomal Dominant PKD) and Autosomal Recessive PKD (ARPKD), this also includes family members and carers over 18 and living in the UK.
We will phone you to find out about your situation and whether a regular phone call from one of our volunteers would be useful.
We will then put you in touch with one of our volunteers. They’ll phone you for a chat on a regular basis. You will decide what you want to talk about but the volunteer will provide support and companionship and be able to tell you about services and activities that could benefit you.
Topic Based Group Teleconferences
We hold regular group teleconference calls on specific topics for up to 6 people. These are hosted by a professional, and two trained volunteers with lived experience of the subject. This gives you the opportunity to dial in, listen to others’ experiences, ask questions and join the discussion from the comfort of your home.
Dates of the teleconferences are posted on the Events page. You need to register for these calls using the link on the event page and the call details are sent out on the day of the call. The call is FREE to you regardless of whether you call from mobile or landline.