0300 111 1234


We can help you with direct support, advice and information or refer you to other relevant and reliable sources via the links below.

Our confidential Helpline number is 0300 111 1234.

We are open Monday to Friday, 9.30am to 8pm, and Saturday/Sunday from 9:30am to 5pm. Leave a message outside these hours.

You can also send an email using our contact us form.

PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website
  • KPIN