Our practical and emotional support, advice and information is available to everyone affected by polcystic kidney disease (PKD).

We provide personalised peer support – online, face-to-face and by phone. We organise free educational events, regional and virtual meetups. 

Our confidential helpline is open from 9:30am to 5:00pm, Mon - Fri, just call 0300 111 1234.



We organise regional and virtual meetups around the UK. Owing to COVID-19, all meetups are currently on Zoom.

Find out about upcoming meetups


Facebook groups

We moderate a number of UK-only Facebook private groups.

Join our Facebook groups


Phone support

We offer support through our one-to-one telephone peer support service, and group support via the teleconference support calls. 

Learn more about our phone support



We hold evening webinars by Zoom throughout the year. 

Find out about future webinars and watch recordings of past ones

Information and support day event

Information & support days

We hold free Information and Support Days around the UK for all PKD patients, their families and carers. 

Find out about the Information & support days



Online workshops for up to 10 people, specially created for the PKD Charity.

Find out about upcoming workshops


Financial advice

We know that many PKD patients, their families or carers face financial difficulties. Whether you can claim benefits or get grants will depend on many factors - such as your income, savings, living costs, stage of kidney disease or disabilities.

Find out about benefits and financial advice

All generations family


It can be difficult to find affordable insurance if you have polycystic kidney disease (PKD). Nevertheless, there are a number of specialist firms who offer all types of insurance to those with pre-existing conditions such as PKD - but be prepared to pay higher premiums because of the higher risk of claims.

Learn more about insurance options

Get in touch

Please contact us if you have a question or would like to chat to one of the team.

Polycystic Kidney Disease Charity
91 Royal College St, London NW1 0SE
Contact us

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