PKD Charity (PKDC) and Kidney Research UK have launched a joint partnership to progress research in polycystic kidney disease (PKD).
The views of people affected by ADPKD are vital when deciding what to research. We asked the James Lind Alliance (who specialise in prioritising research) to help us prioritise the views of people affected by ADPKD (either directly or due to ADPKD in their family) and healthcare professionals.
SONG - Standardised Outcomes in Nephrology - Initiative
The Standardised Outcomes in Nephrology (SONG) Initiative unites patients, family members, caregivers, and health professionals in partnership to establish core outcome sets in chronic kidney disease (CKD) for use in clinical trials and other forms of research.