SONG - Standardised Outcomes in Nephrology - Initiative
The Standardised Outcomes in Nephrology (SONG) is an independent and global initiative that brings together patients, family members, caregivers, and health professionals in partnership to establish core outcome domains and outcome measures in chronic kidney disease (CKD) for use in clinical trials and other forms of research.
An outcome is a measurable effect that a treatment - which could be a drug or other therapeutic intervention - has on a patient. A core outcome set is an agreed standardised set of outcomes that should be reported, as a minimum, in all trials within a specific area of health because they are critically important to all stakeholders.
Trials that report meaningful and relevant outcomes can help patients, families, and their clinicians make informed decisions about treatment based on outcomes that matter to them.
SONG is currently developing core outcomes for haemodialysis (SONG-HD), transplantation (SONG-Tx), children and adolescents (SONG-Kids), and polycystic kidney disease (SONG-PKD). PKD is represented on the SONG Steering Committee by Tess Harris, CEO, PKD Charity.