SONG - Standardised Outcomes in Nephrology - Initiative
The Standardised Outcomes in Nephrology (SONG) Initiative unites patients, family members, caregivers, and health professionals in partnership to establish core outcome sets in chronic kidney disease (CKD) for use in clinical trials and other forms of research.
An outcome is a measurable effect that a treatment has on a patient. This can be a drug or other therapeutic intervention. A core outcome set is a standardised set of outcomes that all stakeholders agree are critically important to measure and report in all trials. Using core outcomes means that trial results can be easily compared. They can also be used in guidelines to help patients, families, and their clinicians make informed decisions about treatments.
SONG is developing core outcomes for children and adolescents (SONG-KIDS), and polycystic kidney disease (SONG-PKD).
Patients, caregivers, family members and healthcare professionals are all welcome to take part.
Children and parents, family members and healthcare professionals are all welcome to take part.