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Consultations & Surveys

Below, we present opportunities for you to be involved in research via consultations and surveys. We always carefully check that all studies and surveys are run by reputable organisations and are for patient benefit only, not commercial use.

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PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website