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0300 111 1234

Volunteer for the PKD Charity

Volunteers

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Do you have some spare time and are interested in getting involved with the work of the PKD Charity?

There are lots of ways you can help us, whether you have only an hour to spare or more time.

Volunteer for our Telephone Peer Support Service

The service provides one-to-one support by phone. Volunteers receive full training and mentoring, and are then matched with a person directly affected by PKD or a family member/carer who needs someone they can talk to who will understand what they are going through.

Host a Meetup

PKD Meetups usually take place in a cafe, and are attended by people affected by PKD who would like to meet others in a similar situation. The role of a Meetup Host is to help organise the venue, meet and greet people when they arrive, help get the conversation going and make people feel welcome, and signpost to the charities information and support services when appropriate.  This role may be suitable for you if you;

  • Like meeting people
  • Have good listening skills

Volunteer at an event

More and more people are taking part in organised fundraising, such as the London Marathon. We're forming a 'PKD Cheering Team' of volunteers around the UK who can go along and help inspire fundraisers to go the extra mile.

Help us with our social media campaigns to raise awareness of PKD

We need an enthusiastic volunteer who enjoys posting on Facebook, Twitter and Instagram to help with campaigns on social media.

Join our Lay Reading Panel

Throughout the year, we invite 'lay' readers to help us develop our information materials by reviewing and commenting on drafts. You can be a patient, parent, family member or carer.

Take part in research projects

We're often asked to help researchers with 'patient involvement' and we're often in need of patients, parents and carers to comment on guidelines. If you're interested in providing your experiences or have a keen eye for reading documents, get in touch.

Hospital Liaison Volunteer

Hospital liaison volunteers help promote our support service to patients with PKD and their families visiting renal units.  This role may be suitable for you if you are able to travel independently to and from renal units in your local area.

Where relevant, full training and out-of-pocket expenses are provided.  For an informal chat please contact: This email address is being protected from spambots. You need JavaScript enabled to view it. or phone 0300 111 1234 (Mon-Fri 9:30am to 5.30pm, or leave a message outside these hours)

Charity trusteeship

We have no current vacancies for trustees.

Contact us

If you feel you can help with the above or anything else, then please contact us.

 

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PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit The Information Standard website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website