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ADPKD aneurysm risk study

People with autosomal dominant polycystic kidney disease (ADPKD) are known to be at high risk of intracranial aneurysms (IA).

Recommendations for third or booster COVID-19 vaccines

Clarification on kidney patients who are eligible for the third primary dose or booster COVID-19 vaccination is now available.

Covid vaccine

Third dose of Covid vaccine for severely immunosuppressed

The JCVI advises that a third dose should be offered to people over 12 who were severely immunosuppressed at the time of their first or second dose, including those with leukaemia, advanced HIV and organ transplant recipients. 

New research on Covid-19 vaccines

Research published this month highlights the need for a third covid-19 vaccine dose for kidney patients, with calls for the JCVI to prioritise roll out.

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PKD Charity and Healx collaborate to apply AI to the discovery of novel treatments for rare kidney diseases

Healx, the AI-powered, patient-inspired technology company accelerating the discovery and development of rare disease treatments at scale, today announced that it would be collaborating with the PKD Charity to identify and progress novel treatments for Autosomal Dominant Polycystic Kidney Disease (ADPKD) and Autosomal Recessive Polycystic Kidney Disease (ARPKD).

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Funding awarded to landmark research project studying chronic pain in ADPKD

We’re delighted to announce a major award from the National Institute for Health Research (NIHR) - the nation's largest funder of health and care research - to study pain in Autosomal Dominant Polycystic Kidney Disease (ADPKD).


Are kidney cilia the key to understanding ADPKD?

The PKD Charity has awarded £10,000 to Newcastle University to analyse the cilia in kidney cells from ADPKD patients.

Community Fund Lottery

PKD Charity wins National Lottery funding to support families affected by PKD

We have succeeded in securing funding from the National Lottery Community Fund for our PKD Positive Peers Programme - a 5-year programme of vital support activities to help patients and families to deal with the traumatic and often devastating effects of polycystic kidney disease (PKD).

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Organ Donation Law in England is Changing

The Bill is expected to become law in Spring 2020. From then, all adults over 18 in England will be considered as a possible organ donor when they die, unless they choose to opt out or are excluded. This is commonly referred to as an ‘opt out’ system.

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