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Aran and Jacob at nursery

ARPKD PhD 3-year research grant award

The PKD Charity, Arran Brown Rainbow Foundation and University of Wolverhampton are jointly funding a pioneering 3-year ARPKD research project at Wolverhampton and UCL London.

Baby boy and baby girl

PKD Charity funds vital PKD databases

The PKD Charity has awarded £20,000 to UCL Centre for Nephrology Royal Free Hospital to fund a specialist research nurse to help develop the ADPKD and ARPKD RaDaR paediatric patient databases.

Christine Mathers

2,000th patient in 100,000 Genomes Project has ADPKD

ADPKD patient Christine Mather has become the 2,000th person in Greater Manchester to take part in the 100,000 Genomes Project, which is transforming the diagnosis and treatment of rare diseases.

Oxford University Hospital

Biliary tract disease linked to polycystic kidney disease

A group of researchers from Oxford Kidney Unit and the University of Oxford has produced the first analysis of whether there is a link between autosomal dominant polycystic kidney disease (ADPKD) and serious biliary tree disease.

The biliary tree refers to parts of the liver, the gallbladder and bile ducts which make, store and secrete bile. Bile has two functions - it helps to absorb fats and oils from our food and it also helps the body excrete some metabolic waste products.

Food labels

Moderate salt restriction is beneficial In ADPKD

Restricting salt in your diet can help slow the progression of ADPKD, according to a recent study. This is a lay summary of an article published in Kidney International, February 2017.

Woman in pain

Understanding pain in Autosomal Dominant Polycystic Kidney Disease (ADPKD)

This is a report of a survey carried out during the ADPKD Information & Support Day, Birmingham Hospital, 23rd January 2016.  The issues of pain were explored in a workshop during the day. We are grateful to participants who completed the survey questionnaire.


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