The PKD Charity has awarded £20,000 to UCL Centre for Nephrology Royal Free Hospital to fund a specialist research nurse to help develop the ADPKD and ARPKD RaDaR paediatric patient databases.
ADPKD patient Christine Mather has become the 2,000th person in Greater Manchester to take part in the 100,000 Genomes Project, which is transforming the diagnosis and treatment of rare diseases.
A group of researchers from Oxford Kidney Unit and the University of Oxford has produced the first analysis of whether there is a link between autosomal dominant polycystic kidney disease (ADPKD) and serious biliary tree disease.
The biliary tree refers to parts of the liver, the gallbladder and bile ducts which make, store and secrete bile. Bile has two functions - it helps to absorb fats and oils from our food and it also helps the body excrete some metabolic waste products.
Restricting salt in your diet can help slow the progression of ADPKD, according to a recent study. This is a lay summary of an article published in Kidney International, February 2017.
This is a report of a survey carried out during the ADPKD Information & Support Day, Birmingham Hospital, 23rd January 2016. The issues of pain were explored in a workshop during the day. We are grateful to participants who completed the survey questionnaire.