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NBTA Launch

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July 2012

The National BAME (Black, Asian and Minority Ethnic) Transplant Alliance – NBTA - was launched in July 2012. The NBTA’s mission is to bring together “people, passion and resources to address the barriers faced by those from a Black, Asian or Minority Ethnic genetic heritage needing a whole organ or stem cell transplant”.

People with BAME and mixed parentage backgrounds face difficulties finding appropriately matched organ donors. Black and Asian people are three times more likely to need a transplant than the general population but donation rates are lower. Less than 2% of people on the NHS Organ Donor Register (ODR) are from the BAME community. Consequently, BAME people may wait significantly longer for a kidney transplant than the current average of 3 to 4 years.

The NBTA aims to increase by 15% the numbers joining the ODR by 2015 by making a significant change in attitude to donation and transplantation. They also aim to increase consent rates from families of potential deceased donors and increase the numbers of living organ donors.

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PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website
  • KPIN