KDIGO Conference Held on ADPKD

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January 2014

The first-ever Controversies Conference organised by KDIGO on Autosomal Dominant Polycystic Kidney Disease (ADPKD) was held in Edinburgh from 16 to 19 January 2014.

Consensus recommendations were made by more than 60 globally-recognized experts.

This was KDIGO’s 15th Controversies Conference which, for the first time, included patient representatives among its participants from Europe, the US and Japan. The PKD Charity was represented by Tess Harris, who co-chaired the patient work group which focused on 'Practical Integrated Patient Support'.

KDIGO Conference People

Back row (left to right): Dwight Odland (PKD Foundation USA), Uwe Korst (PKD Germany), Tess Harris (PKD Charity UK), Dr Olivier Devuyst (University of Zurich, Switzerland/co-chair KDIGO Conference), Corinne Lagrafeuil (PKD France)

Front row (left to right): Flavia Galletti (PKD Switzerland), Nicole Harr (PKD Foundation, USA), Luisa Sternfeld-Pavia (PKD Italy), Kaori Winston (PKD Japan), Dr Vicente Torres (Mayo Clinic, USA/co-chair KDIGO Conference), Eiko Hodouti (PKD Japan), Brenda de Coninck (PKD Netherlands), Dr Eiji Higashihara (Kyorin University Japan)

Lab tests or clinical signs do not readily indicate several of the challenges ADPKD patients face.  Patients suffer pain, body changes and psychosocial obstacles that are important but are not always recognized by clinicians.

The conference began with plenary session talks that reviewed the current state of what we know about ADPKD.  The breakout sessions that followed included in-depth discussions on its diagnosis, management of hypertension, kidney function decline and other manifestations in the kidney as well as non-kidney complications.  There also was a topic group devoted to kidney failure due to ADPKD.

The conference chairs were Vicente Torres, MD, PhD of the Mayo Clinic in Rochester, Minnesota and Olivier Devuyst, MD, PhD of the University of Zurich in Switzerland.

Dr. Bertram Kasiske of the University of Minnesota, said: “This Controversies Conference recognized the implications of this disease on the lives of patients.  The patient breakout group discussed recommendations for clinicians as well as fellow patients on coping with the disease."

Later in 2014, the recommendations from the conference will be published in a peer-reviewed, international journal.

The next challenge is to put all the recommendations into global medical practice.

Find out more about the conference and the work of KDIGO.