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PKD Awareness Month

PKD Awareness Month

September is #PKDAwareness Month. As you know, around 70,000 people are affected by PKD in the UK. The more people who know about PKD, the more resources we can dedicate to finding treatments and a cure. PKD Awareness Month is our opportunity to step up our efforts and gives us a platform to widely spread the word, share stories and encourage others to learn more.

Check out the ways you can get involved with #PKDAwareness Month this September!

  • Change your Facebook profile pic with our #PKDAwareness frame and encourage your friends and family to do the same - Search ‘PKD Awareness’ when finding your frame!
  • Buy your virtual #PKDballoons and help PKD Charity continue to raise vital awareness about PKD and offer support to those in need.
  • Take part in the PKD Zip Line on 22 September - Zoom through the sky on the fastest zip line in the world to enable PKD Charity to fund research, support those in need and raise vital awareness.
  • Sign up to the Edinburgh Kiltwalk where 140% (!) of your fundraising goes to PKD Charity. From the 5 mile Wee Wander to the 26 mile Mighty Stride, anyone can take part.
  • Organise a bake sale or coffee morning within your community to start a conversation about PKD, and help raise funds to support anyone affected by PKD.
  • Do a Skydive in September - Have fun and raise money and awareness by doing a PKD Parachute jump! Learn more and book for free here.
  • Take part in Jeans for Genes Day between 16 – 20 September in your school, workplace or community as part of #PKDAwareness Month to transform the lives of children affected by a genetic disorder. Just select ‘PKD Charity’ when you sign up, and 50% of your fundraising will support our work!

Download your social media banners, posts and frames to help spread the word about #PKDAwareness Month across social media!

Social media profile frame Twitter banner    Facebook banner Instagram post

Click here to order your PKD Charity resources

However you decide to get involved with #PKDAwareness Month this September, your vital support will help support people across the world who are living with PKD.

Together let's spread the word, fund research and end PKD!

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PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website