Facebook groups

Join our closed, moderated UK-only Facebook groups

For ADPKD - autosomal dominant polycystic kidney disease

• ADPKD adults patients, family members and carers
• Parents of children with ADPKD

For ARPKD - autosomal recessive polycystic kidney disease

• ARPKD parents of children with ARPKD and adults patients - family members and carers are welcome too

“I found the group on Facebook and was immediately immersed into a very friendly and welcoming environment. I felt so much better.” Vicky

For help and guidance online, please read the PKD Charity Policy on Social Media and Online Communities.

Medical disclaimer: Content published on social media and online communities is not meant as a substitute for professional medical advice. You must consult your GP, hospital consultant, pharmacist or other health/social care professional if you have any concerns about your health or social situation.