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Rare Disease Day 28 February 2018

Rare Disease day

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On Rare Disease Day, we want to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' and families' lives.

Autosomal Recessive Polycystic Kidney Disease (ARPKD) is a rare disease affecting an estimated 2000 babies, children and adults in the UK. Rare Disease Day 2018 is an ideal opportunity to raise awareness of ARPKD. By joining forces, globally, we can give hope to everyone living with and affected by ARPKD.

How to take part and help raise awareness of ARPKD

Share our video of families talking about ARPKD.

Share the official Rare Disease Day video.

Find out more about ARPKD.

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PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit The Information Standard website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • National Voices Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website