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The Information Standard

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The PKD Charity was certified as a provider of high quality health and social care information by the Royal Society of Public Health (RSPH) on 13 August 2013 and has been awarded The Information Standard quality mark.

We meet the Information Standard scheme criteria of producing safe and reliable health and social care information. All the content on this site within the sections 'About ADPKD' and 'About ARPKD' will be reviewed, revised and updated in accordance with the PKD Charity Information Standard process.

Our commitment to producing high quality information is expressed in a Policy Statement, which outlines the criteria we apply when creating and checking information products. These criteria are based largely on the characteristics of good quality health information developed by Angela Coulter in the book 'Engaging Patients in Healthcare' (OUP, 2011, Table 3.1, Loc 1309). Read the PKD Charity Policy Statement here.

The Information Standard is a certification scheme for health and social care information in England. The scheme was set up by the Department of Health (DH) to provide a quality mark. The DH’s research showed that eight out of ten people have tried to find health information, but most of those people were unsure what information they could trust. The Information Standard mark provides an easy way to identify quality information that you can trust.


The PKD Charity is responsible for the accuracy of the health and social care information on this website and in printed publications where the Information Standard process has been applied. The Department of Health, who operates the Information Standard scheme, bears no responsibility for costs, losses or damages arising from the information being inaccurate or from us failing to include relevant information.

User-generated information is excluded from the scope of certification: blogs, forums and personal experience pages or stories – except where personal experience information has been produced through a systematic process of validation.

Please contact us if you have any questions about how we produce health and social care information.

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PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website