The PKD Charity is committed to producing reliable, good quality and evidence-based health and social care information. All the content on this site within the sections on 'ADPKD' and 'ARPKD' are reviewed, revised and updated in accordance with the PKD Charity's Information Standard process.
The PKD Process incorporates the NHS Information Standard Principles:
Our commitment to producing high quality information is expressed in a Policy Statement, which outlines the criteria we apply when creating and checking information products. These criteria are based largely on the characteristics of good quality health information developed by Angela Coulter in the book 'Engaging Patients in Healthcare' (OUP, 2011, Table 3.1, Loc 1309). Read the PKD Charity Policy Statement here.
The PKD Charity is responsible for the accuracy of the health and social care information on this website and in printed publications where the Information Standard process has been applied. The NHS, whose principles we have applied, bears no responsibility for costs, losses or damages arising from the information being inaccurate or from us failing to include relevant information.
User-generated information is excluded from the scope of certification: blogs, forums and personal experience pages or stories – except where personal experience information has been produced through a systematic process of validation.