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Coping

Help and Support

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One of the reasons why living with ADPKD can be so difficult is that it is a silent, isolating disease. The general public—including schools and employers—know little or nothing about it, and even close friends can find it difficult to understand how you are feeling.

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Relationships and Sex

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Sex and relationships are a very important part of life for most individuals and couples. They are also very personal matters that can be difficult to talk about, so this may be why you may be unaware that ADPKD can affect your sex life and relationships as well as your physical health.

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PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website