About PKD

Polycystic Kidney Disease or PKD is a range of life-threatening inherited conditions that can cause kidney failure and affect other organs

Learn about ADPKD or ARPKD

Get support

We want everyone affected by PKD to life live to the full by providing the help, information and support needed at every stage. 

Find out how to get support

PKD research

Research is the only way to stop the progression of PKD and transform the lives of those affected today and in the future.

Read more about PKD research

Latest news

September 15, 2021

New recommendations for third Covid vaccine dose in kidney patients

by Jane Pugh

Clarification from the UK Kidney Association on kidney patients who're eligible for the third COVID-19 vaccination has been issued.
September 02, 2021

Third dose of Covid vaccine for severely immunosuppressed

by Jane Pugh

The JCVI advises that a third dose should be offered to people over 12 who were severely immunosuppressed at the time of their first or second dose, including those with leukaemia, advanced HIV…
August 18, 2021

New research on Covid-19 vaccines

by Jane Pugh

Research published this month highlights the need for a third covid-19 vaccine dose for kidney patients, with calls for the JCVI to prioritise roll out.
July 21, 2021

COVID-19 (Coronavirus) and polycystic kidney disease update

by Hannah Bridges

We provide some quick facts here on COVID-19 for people with autosomal dominant polycystic kidney disease (ADPKD). The situation keeps changing and rules can differ by area. 
February 26, 2021

PKD Charity and Healx collaborate to apply AI to the discovery of novel treatments for rare kidney diseases

by Tess Harris

Healx, the AI-powered, patient-inspired technology company accelerating the discovery and development of rare disease treatments at scale, today announced that it would be collaborating with the PKD Charity to identify and progress novel…
May 13, 2020

Funding awarded to landmark research project studying chronic pain in ADPKD

by Jane Pugh

We’re delighted to announce a major award from the National Institute for Health Research (NIHR) - the nation's largest funder of health and care research - to study pain in Autosomal Dominant Polycystic…
January 03, 2020

Are kidney cilia the key to understanding ADPKD?

by Tess Harris

The PKD Charity has awarded £10,000 to Newcastle University to analyse the cilia in kidney cells from ADPKD patients.
December 12, 2019

PKD Charity wins National Lottery funding to support families affected by PKD

by Tess Harris

We have succeeded in securing funding from the National Lottery Community Fund for our PKD Positive Peers Programme - a 5-year programme of vital support activities to help patients and families to deal…
March 02, 2019

Organ Donation Law in England is Changing

by Tess Harris

The Bill is expected to become law in Spring 2020. From then, all adults over 18 in England will be considered as a possible organ donor when they die, unless they choose to…

Help fund PKD research and the Charity’s work

Your generous donations and fundraising help us achieve our three core aims of support, awareness and research, as we work to improve the lives of everyone affected by PKD and give hope for the future​.

Find out how to fundraise for the PKD Charity

Thank you for supporting our work

Your donation means we can support those with PKD and fund vital research.