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About 70,000 adults and children in the UK may have Polycystic Kidney Disease or PKD - life-threatening inherited conditions that can cause renal (kidney) failure and affect other organs in the body.

We support those affected, their families and carers. We raise awareness and fund research.

Find out more about PKD.

SUPPORT LINE

0300 111 1234

Welcome to the PKD Charity

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Latest News & Events

2,000th patient in 100,000 Genomes Project has ADPKD

ADPKD patient Christine Mather has become the 2,000th person in Greater Manchester to take part in the 100,000 Genomes Project, which is transforming the diagnosis and treatment of rare diseases.

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Spring Ball raises £2,000

March 2016

A Spring Ball held at Tern Hill Hall, Shropshire Saturday 5th March 2016 raised almost £2,000 for the PKD Charity.

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Awards for All Peer Support Pilot Grant Awarded

February 2016

PKD Charity receives Awards for All Grants to Pilot 1-Year Telephone Befriending & Peer Support Project

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Latest Research

SONG Initiative

SONG - Standardised Outcomes in Nephrology - Initiative

The Standardised Outcomes in Nephrology (SONG) is an independent and global initiative that brings together patients, family members, caregivers, and health professionals in partnership to establish core outcome domains and outcome measures in chronic kidney disease (CKD) for use in clinical trials and other forms of research.

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Grant to investigate blood pressure in children and young people with ADPKD

The PKD Charity has awarded £10,000 to UCL Institute of Child Health/Great Ormond St Hospital for a study investigating the optimal bood pressure level in children and young people with ADPKD (Autosomal Dominant Polycystic Kidney Disease).

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Clinical research fellowship grant - Addenbrooke's Hospital

The PKD Charity has awarded £10,000 to Addenbrooke's Charitable Trust towards a clinical research fellowship.

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Latest Tweets

PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit The Information Standard website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • National Voices Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website