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About the PKD Telephone Befriending Pilots

Telephone Befriending

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The PKD Charity telephone befriending pilots will enable us to determine the effectiveness of such a service and to learn what does and doesn’t work before committing to a national programme. The pilots are supported by grants from the Big Lottery Awards for All programme. 

Information about the project will also be available at the renal units listed below, and at their satellite units.


Royal Free
Barts and the London
King’s College
West London

North West

Royal Preston
Manchester R.I.
Salford Royal
Royal Liverpool
Liverpool – Aintree


Edinburgh Royal Infirmary
Glasgow Western Infirmary
Crosshouse Hospital

What is telephone befriending and peer support?

When we’re going through a difficult time living with Polycystic Kidney Disease (PKD) or experiencing a period of change, sometimes it can be helpful to talk to someone who understands how we feel.  A supportive, listening ear and reassurance can help us to feel more confident, so we arrange for volunteers to provide telephone befriending support to adults affected by ADPKD (Autosomal Dominant PKD) or ARPKD (Autosomal Recessive PKD). 

How does it work?

We will phone you to find out about your situation and whether a regular weekly phone call from one of our volunteers would be useful.

If possible and appropriate, we’ll put you in touch with one of our volunteers.  They’ll phone you for a chat at the same time every week.  You will decide what you want to talk about each week but the volunteer will provide companionship and be able to tell you about services and activities that could benefit you.

Who can apply?

Anyone who:

  • is over 18
  • lives in Greater London, the North West of England or Scotland
  • has ADPKD or ARPKD
  • is a family member or carer for someone with ADPKD or ARPKD


You can refer yourself to the service or you can be referred to us by a friend, relative or carer, a health or social care professional, or from another voluntary organisation who knows you.

When you are referred to us by someone else, we will contact you directly to have a chat about how the service could help you.

What Next?

 For a referral form or more information please contact:

Esther O'Brien
T: 0300 111 1234 (Mon-Fri 10am-4.30pm or leave a message)
Or email: This email address is being protected from spambots. You need JavaScript enabled to view it.

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PKD Charity is a Member of

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  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
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