HIYA-PKD Study
Family study of early hypertension in children and young people at risk of autosomal dominant polycystic kidney disease: The HIYA-PKD Study.
Who Can Take Part?
- Do you have a parent with autosomal dominant polycystic kidney disease (ADPKD)?
- Are you aged 12-17 years?
- Or do you have ADPKD and also have a child aged 12-17 years?
If yes, you are invited to participate in a research study taking place at Evelina London Children’s Hospital, and Royal Manchester Children’s Hospital, investigating blood pressure in children at risk of ADPKD.
Professor Manish Sinha (Consultant Paediatric Nephrologist) is leading the study in London, and Dr Dean Wallace (Consultant Paediatric Nephrologist) is leading the study in Manchester.
Register Your Interest in HIYA-PKD
What Is the Aim of the Study?
The aim of this study is to measure blood pressure and look at the potential effect of this on the health of the heart, blood tubes (arteries) and other organs.
As part of this study, we will:
- Do an MRI scan of the kidneys and heart
- Assess blood pressure using several techniques
- Check for ADPKD by a genetic test
This will most commonly require one visit to the hospital. We will cover some travel expenses for you to visit your chosen study site.
Why Is This Important?
One of the earliest signs of ADPKD is high blood pressure, which can appear even in childhood. If left untreated, high blood pressure can speed up kidney damage and place extra strain on the heart and other organs.
The early detection and management of high blood pressure is a simple but crucial step towards protecting long-term health.
Meet The Principal Investigators
Professor Manish Sinha, Chief Investigator for the HIYA-PKD study, is a Consultant Paediatric Nephrologist at Evelina London Children’s Hospital with over 20 years’ experience caring for children with kidney conditions.
A leading expert in autosomal dominant and recessive polycystic kidney disease (ADPKD and ARPKD), Professor Sinha also holds a PhD from King’s College London focused on hypertension and cardiovascular health in young people with kidney disease.
In this video, he shares why the HIYA-PKD study is so important for improving understanding and care for children and young people at risk of ADPKD.
Watch on YouTube
Dr Dean Wallace is a Consultant Paediatric Nephrologist and principle Investigator for the Manchester site of Hiya-PKD. He has over a decade of experience in managing children with kidney conditions and specialises in the areas of dialysis, hypertension, tubulopathies and research trials.
The Hiya-PKD study combines his interests in the cardiovascular consequences of types of chronic kidney diseases with his passion for conducting high impact research trials and producing high quality evidence for children.
Take Part in the Study
We’d love for you to be part of our research. If you’re interested, simply click the link below to complete a short survey:
Register Your Interest in HIYA-PKD
If you would like any further information beforehand, please contact the study co-ordinator, Benjamin Boxer:
gst[email protected]
Download and Share Study Information
If you would like to speak to us about what support we can offer you or a loved one, please visit PKD Support or contact us today and speak to a member of our team.
Tags: ADPKD, Research, PKD, PKDTreatment, blood pressure, hypertension
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