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European ADPKD Forum Report Published

EAF Faculty members

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January 2015

On 29 January 2015, the European ADPKD Forum launched its first report, the EAF Report.

This report is based on the latest scientific knowledge about ADPKD and insights from leading experts and patient advocates. It also features results from recent surveys of patients. The report was launched in Brussels at a meeting attended by patient advocates, representatives of various health stakeholder organisations, European Union officials and ADPKD experts.

The report was launched in Brussels at a meeting attended by patient advocates, representatives of various health stakeholder organisations, European Union officials and ADPKD experts.

The European ADPKD Forum (EAF) is a multidisciplinary, international faculty of experts dedicated to improving the health and quality of life of people with autosomal dominant polycystic kidney disease (ADPKD). The EAF Faculty comprises leading patient advocates together with practitioners and researchers from the fields of nephrology, hepatology and genetics.

The Report is endorsed by PKD International and EGAN, the Patient Network for Research and Health. It was developed in alignment with the KDIGO (Kidney Disease: Improving Global Outcomes) Controversies Conference Report on ADPKD. The report is accompanied by the EAF Brussels Declaration, which encapsulates the EAF recommendations and their rationale.

Download the full EAF Report.

Download the Brussels Declaration on ADPKD.

Visit the PKD International website for more information on the EAF Report.

Read the KDIGO Controversies Report here.

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