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The PKD Charity

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The PKD Charity was established in December 2000 by patients, professionals and members of families affected by PKD.

Our Charitable Objects

  • To relieve people affected by polycystic kidney disease, in particular by providing information, advice and support to patients and families affected by polycystic kidney disorder.
  • To fund research into determining the causes of polycystic kidney disease and into discovering treatments and a cure for PKD.  Research results to be available to the medical community and the public and to be reported on our web site and in our newsletter.
  • To raise awareness of PKD, providing information to the public, the medical community and the media.

Board of Trustees

  • Ms Judith Dignum (Treasurer)
  • Mrs Edwina Graham
  • Mr Barry Harpham (Chair)
  • Mr Raj Johal
  • Mr Sarbjit Johal
  • Ms Rebecca Murphy
  • Mrs Margaret Pope
  • Mrs Christine Wallach


  • Dr Vincent Cable, MP
  • Mr Laurence Isaacson, CBE

Administration and Fundraising

  • Ms Tess Harris (Chief Executive)
  • Ms Esther Wright (Fundraising Manager)

Contact us


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PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit The Information Standard website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • National Voices Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website